ASU Electronic Theses and Dissertations
This collection includes most of the ASU Theses and Dissertations from 2011 to present. ASU Theses and Dissertations are available in downloadable PDF format; however, a small percentage of items are under embargo. Information about the dissertations/theses includes degree information, committee members, an abstract, supporting data or media.
In addition to the electronic theses found in the ASU Digital Repository, ASU Theses and Dissertations can be found in the ASU Library Catalog.
Dissertations and Theses granted by Arizona State University are archived and made available through a joint effort of the ASU Graduate College and the ASU Libraries. For more information or questions about this collection contact or visit the Digital Repository ETD Library Guide or contact the ASU Graduate College at gradformat@asu.edu.
Filtering by
- All Subjects: Gender Studies
- Creators: Fonow, Mary Margaret
Placing feminist cultural studies theories of affect in conversation with feminist disability studies and girlhood studies, this dissertation maps evocations of disabled girlhood. It traces how certain affective states as an intersubjective glue stick to specific disabled girls’ bodies and how these intersubjective attachments generate an emergent affective atmosphere that attempts to repair the fraying fantasy of the good life. Utilizing affect as methodology and object of analysis, this dissertation interrogates ambivalent visual artifacts: ranging from the “real” figure of the disabled girl through YouTubers, Charisse Living with Cerebral Palsy and Rikki Poynter, to a fictional disabled girl in Degrassi: Next Class; spanning from physically disabled beauty pageant contestants to autistic girls learning how to dance; and, finally, looking to a black disabled girl in her life and death, Jerika Bolen. I contend that through their roles as disability educators, shared objects of happiness and optimism, and pedagogues of death, exceptional disabled girls have been deployed as guides on a new roadmap to ideal, affective post-ADA citizenhood.
It is in this context that this dissertation, informed by critical disability studies and feminist science and technology studies, examines the understanding and enactment of disability and responsibility in relation to biomedical technologies. I draw from qualitative empirical data from three distinct case studies, each focused on a different biomedical technology: prenatal genetic screening and diagnosis, deep brain stimulation, and do-it-yourself artificial pancreas systems. Analyzing semi-structured interviews and primary documents through an inductive framework that takes up elements of Grounded Theory and hermeneutic phenomenology, this research demonstrates a series of tensions. As disability becomes increasingly associated with discrete biological characteristics and medical professionals claim a growing authority over disabled bodyminds, users of these technologies are caught in a double bind of personal responsibility and epistemic invalidation. Technologies, however, do not occupy either exclusively oppressive or liberatory roles. Rather, they are used with full acknowledgement of their role in perpetuating medical authority and neoliberal paradigms as well as their individual benefit. Experiential and embodied knowledge, particular when in tension with clinical knowledge, is invalidated as a transgression of expert authority. To reject these invalidations, communities cohering around subaltern knowledges emerge in resistance to the mismatched priorities and expectations of medical authority, creating space for alternative disabled imaginaries.