Matching Items (5)
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- All Subjects: Disability studies
- Creators: Tompkins, Cynthia
- Creators: Swadener, Elizabeth
Description
From Impossible Angles Towards Strategic Ones: Narratives of Death, Life, and Disability in La Muerte me Da and El Huesped The glamour of single-handedly overcoming adversity, sidestepping obstacles, or defying the odds makes for great mystery or adventure fiction, but fails to do justice (poetic or otherwise) to lives that are both physically and conceptually "marked" by more complex challenges. From a theoretical view, a similar desire to escape or maintain the perceived "dividing line" between fact and fiction, nature and nurture, mind and body, is confronted by a diverse set of human experiences, all of which have come to be defined, and continue to define themselves, along both sides of such a divide. Disability, typically viewed as an "emerging" branch of literary and cultural critique, is perhaps the most pervasive. Hidden under the covert language of the "grotesque", "monstrous", "doppelgänger", "freak", "eccentric" or "queer", disability has historically represented something other than itself. Two texts that attest to both the real and imagined possibilities of resignification and new modes of articulation surrounding disability are La muerte me da (2007) by Cristina Rivera Garza and El huésped (2006) by Guadalupe Nettel. From different points of departure, both texts offer a narrative approximation towards the disabled mind, body, and perceptual experience. In ways that are both similar and different, these narratives question one's perceived access to that which is otherwise understood to be the physically and conceptually "inaccessible" or "illegible" space of disability. Such approximations towards, and articulations of, the disability experience are processes that move, largely unnoticed, both within and beyond texts. As this construct continues to transform itself from both within and outside itself, disability acquires intellectual and practical value while requiring the "experts" in fields beyond the narrow scope of medicine, education, and rehabilitation to (re)consider their own approaches to, and apprehensions of, disability in order to redefine what or who is accessible or viable for literary and cultural debate.
ContributorsNewland, Rachel Renee (Author) / Tompkins, Cynthia (Thesis advisor) / Urioste-Azcorra, Carmen (Committee member) / Rosales, Jesus (Committee member) / Arizona State University (Publisher)
Created2014
Description
Autism has a unique history. The definition has broadened and changed over time, from an emotional disturbance with psychogenic origins to a neurodevelopmental disability with suspected environmental and genetic origins. Diagnosis occurs later than children born with obvious disabilities such as cerebral palsy or Down syndrome, but earlier than milder, high-incidence disabilities such as dyslexia or attention deficit disorder. Historically, parents have advocated for changes in the way children with autism receive services and how federal funding and educational services are provided. There is often tension between these parents and the medical establishment. There can also be tension between the community of parents and the community of adults who have high functioning autism and Asperger syndrome. Studies have examined individual aspects of autism, from the diagnosis, caring for a child with autism, educational interventions, and genetics to characteristics of the internet community of adults with autism spectrum disorders (ASDs). This study includes interviews with mothers whose children were diagnosed with autism between 1974 and 2004, observations of appointments with developmental pediatricians at which diagnoses were given in 2010, and an analysis of media representations of autism over the same time period. These different data were analyzed together to create a new understanding about the history and present state of autism diagnosis.
ContributorsHornstein, Shana (Author) / Swadener, Elizabeth (Thesis advisor) / Mathur, Sarup (Thesis advisor) / Cheatham, Gregory (Committee member) / Arizona State University (Publisher)
Created2011
Description
Hispanic Narratives of the Ill or Disabled Woman: A Feminist Disability Theory Approach, is a comprehensive study that delves into the topic of the ill or disabled female in the narratives of Hispanic female authors who either have a disability or who have been affected by a chronic or terminal illness, causing debilitation. In order to address this topic, this thesis investigates disability identity by utilizing feminist disability theory by Kim Q. Hall, Rosemarie Garland-Thomson, and Susan Wendell, amongst others, and at the same time reviews current disability policies in both Latin American and Spanish societies. By providing a critical view of this theme from a feminist standpoint, this study places emphasis on the lived experiences that ill or disabled Hispanic women face, doubly marginalized, not only based on their illness or (dis)ability, but also their gender.
This in depth analysis of Fruta Podrida (2007) and Sangre en el ojo (2012) by Lina Meruane, Diario del dolor (2004) by María Luisa Puga, Clavícula: (mi clavícula y otros inmensos desajustes (2017) by Marta Sanz, Diario de una pasajera by Ágata Gligo (1997), Si crees en mí, te sorprenderé (2014) by Ana Vives, and The Ladies Gallery: A Memory of Family Secrets by Irene Vilar provides relevant information on societal norms, policies and current debate about healthcare and women’s rights in various Hispanic countries and the United States. At the same time, it emphasizes the disabled female as subject, and investigates the societal perpetuation of disability. This dissertation discusses various concepts from disability studies, such as the illness/disability narrative, corporeal invisibility, normalcy, medical pathologization, stereotyping, and ableism, and investigates them in relation to both chronic and terminal illness or physical and mental disability in relation to the ill or disabled Hispanic female.
This in depth analysis of Fruta Podrida (2007) and Sangre en el ojo (2012) by Lina Meruane, Diario del dolor (2004) by María Luisa Puga, Clavícula: (mi clavícula y otros inmensos desajustes (2017) by Marta Sanz, Diario de una pasajera by Ágata Gligo (1997), Si crees en mí, te sorprenderé (2014) by Ana Vives, and The Ladies Gallery: A Memory of Family Secrets by Irene Vilar provides relevant information on societal norms, policies and current debate about healthcare and women’s rights in various Hispanic countries and the United States. At the same time, it emphasizes the disabled female as subject, and investigates the societal perpetuation of disability. This dissertation discusses various concepts from disability studies, such as the illness/disability narrative, corporeal invisibility, normalcy, medical pathologization, stereotyping, and ableism, and investigates them in relation to both chronic and terminal illness or physical and mental disability in relation to the ill or disabled Hispanic female.
ContributorsKnupp, April M (Author) / Urioste-Azcorra, Carmen (Thesis advisor) / Tompkins, Cynthia (Committee member) / Foster, David W (Committee member) / Arizona State University (Publisher)
Created2018
Description
Coming out from under the shadow of sight, blindness has a story to tell. From Tiresias to The Miracle Worker, literary and visual representations of blindness are cornerstones of compelling tales of loss and overcoming. In support of the inherent value of sight, these conventional narratives overshadow the stories and lived experiences of blind people themselves. In light of this misrepresentation, I explore what it means to read, write, and see blindness, as well as consider the implications of being blind in present-day Latin America. I achieve this through a transnational and interdisciplinary analysis of novels, short stories, film, and photography by blind and sighted artists and writers whose work has been published or exhibited after the year 2000. In this context, I will demonstrate how blindness can serve as a lens through which the production and reception of narrative and visual culture can be critically evaluated from a blind person’s perspective. Most importantly, this dissertation showcases the critical and creative work of blind people in order to demystify stereotypes and contextualize anxieties surrounding blindness, perception, and identity.
ContributorsNewland, Rachel Renee (Author) / Tompkins, Cynthia (Thesis advisor) / Foster, David W. (Committee member) / Urioste-Azcorra, Carmen (Committee member) / Arizona State University (Publisher)
Created2018
Description
Despite the changing social, legal, and political context in influencing the definition of mental disability, medical scholarship has maintained its position as the primary reference to interpret mental disability in the immigration system. This preliminary study examines the role of medical scholarship in attributing to the exclusion of undesired immigrants through its definition of mental disability. This paper focuses upon immigration cases to determine the patterns that emerge when immigration intersects with mental disability. The data consists of four immigration court cases in 1951-1985, 1986-2005, 2006-2015, which mark the shift of immigration policy in the United States of America (US). The court documents are collected from websites that provide online access to these documents. The examination of the cases focuses on three important criterions: a summary of cases, mental disability circumstances, and judges’ considerations. This paper uses the analysis of political deviance in courtroom settings to get an understanding of the shift in the definition of mental disability in the immigration court by tracing economic, political, and social environments that are intertwined and relevant in creating a ‘mental disabilitiy’ definition. This study suggests that medical scholarship has historically become powerful in shaping mental disability as a form of social control. From historical and case analysis, there have been changes in policies and processes toward immigrants appear to take place in the aftermath of major events—World War II, AIDS epidemic, 9/11 terrorist attack, and now Covid-19 pandemic. Preliminary examination of documented cases suggests future analysis could look at how these major events shape immigration processes and policies that more heavily rely on definitions of mental illness and use competency to stand trial proceedings to indefinitely detain people.
ContributorsArifianti, Estu Dyah (Author) / Lauderdale, Pat (Thesis advisor) / Lauderdale, Annamaria (Committee member) / Swadener, Elizabeth (Committee member) / Arizona State University (Publisher)
Created2020