Matching Items (3)
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- All Subjects: Disability studies
- Genre: Doctoral Dissertation
- Creators: Vega, Sujey
Description
Deeply entrenched eugenic values overdetermine who is treated with care and dignity and who is treated with violence. These eugenic values inform and are informed by settler colonialism, patriarchy, and ableism. Carceral locales such as nursing homes, hospitals, and jails enact specific kinds of harm onto disabled people and rely on their convoluted and self-serving bureaucratic processes to evade responsibility. Given my interest in the indivisibility of carceral logics, spaces of capture, and ableism, my focus in this dissertation is both the real-life contexts of the individual incidents and the systemic, cross-institutional patterns evident in each of the three incidents analyzed.I take a modified case study approach to three incidents in which disabled people in carceral locales experience tremendous harm. The first incident is about the gross medical neglect and rape of a San Carlos Apache disabled woman at a skilled nursing care facility in Phoenix, Arizona. The second incident occurred at a hospital in Austin, Texas where doctors worked hastily to killing a Black disabled man within only days of his arrival and change his code status to Do Not Resuscitate against his family’s will. The third incident focuses on duty of care violations and disability-based discrimination against a white disabled man at a Chicago jail. These situations, when analyzed individually and with/against one another, identify important connections relating to institutional power and cross-institution patterns of harm. I find that the paternal dynamics of medical[ized] facilities, the pervading anti-disability sentiments in US society, and bureaucratic violence make accountability and justice impossible.
ContributorsPeer, Victoria (Author) / Swadener, Beth B (Thesis advisor) / Vega, Sujey (Committee member) / Gomez, Alan E (Committee member) / Arizona State University (Publisher)
Created2022
Description
The purpose of this study was to trouble existing conceptions of disability that ground music education literature and practice. I sought plausible insights into how disability is experienced in, through, and/or around music by participants who are disabled persons/persons with disabilities (DP/PwD). Insights gained might allow readers to complexify and trouble taken-for-granted assumptions about disability. Questions included: (a) How do participants experience disability in, through, and around music? (b) What plausible insights related to disability can be gained by attending to participants’ experiences of disability in, through, and around music? (c) What plausible insights related to inclusion can be gained by attending to participants’ experiences of disability in, through, and around music? The inquiry approach was grounded in Buberian relational ontology, phenomenology, interactional theories of disability, and narrative.
Seven DP/PwD participated in this study: (a) Erica, a 14-year-old diagnosed with a developmental disability of unknown etiology; (b) Duke, a drummer diagnosed with Williams syndrome; (c) Birdie, an abstract visual artist with epilepsy who used music to inform her art; (d) Daren, a b-boy/breakdancer diagnosed with Tourette syndrome, (e) Sienna, a legally blind social work college student who played banjo in a music therapy-based bluegrass band and participated in musical theatre; (f) Ice Queen, an undergraduate flute player recently diagnosed with Attention deficit/hyperactivity disorder (ADHD); and (g) Culann, an adult counselor and music listener with ADHD and mood disorders. Data generation included conversational interviews, observations, artmaking, and serendipitous data.
Data co-generated with participants were crafted into narratives of their lifeworlds, including description of their experiences with disability in, through, and around music and in other aspects of their lives. An envisioned conversation among all participants demonstrates the shifts and complexities in the meanings of disability and unpacks different ways participants describe and understand disability and the myriad roles that music plays in their lifeworlds. The final chapter of the study offers discussions and suggestions regarding thinking about and approaching disability (i.e., interactional theories, intersectionality, and identity), inclusion (i.e., belonging, suggestions by participants, and anti-ableist pedagogy), and research/writing.
Seven DP/PwD participated in this study: (a) Erica, a 14-year-old diagnosed with a developmental disability of unknown etiology; (b) Duke, a drummer diagnosed with Williams syndrome; (c) Birdie, an abstract visual artist with epilepsy who used music to inform her art; (d) Daren, a b-boy/breakdancer diagnosed with Tourette syndrome, (e) Sienna, a legally blind social work college student who played banjo in a music therapy-based bluegrass band and participated in musical theatre; (f) Ice Queen, an undergraduate flute player recently diagnosed with Attention deficit/hyperactivity disorder (ADHD); and (g) Culann, an adult counselor and music listener with ADHD and mood disorders. Data generation included conversational interviews, observations, artmaking, and serendipitous data.
Data co-generated with participants were crafted into narratives of their lifeworlds, including description of their experiences with disability in, through, and around music and in other aspects of their lives. An envisioned conversation among all participants demonstrates the shifts and complexities in the meanings of disability and unpacks different ways participants describe and understand disability and the myriad roles that music plays in their lifeworlds. The final chapter of the study offers discussions and suggestions regarding thinking about and approaching disability (i.e., interactional theories, intersectionality, and identity), inclusion (i.e., belonging, suggestions by participants, and anti-ableist pedagogy), and research/writing.
ContributorsRathgeber, Jesse (Author) / Stauffer, Sandra L (Thesis advisor) / Mantie, Roger (Committee member) / Schmidt, Margaret (Committee member) / Solís, Ted (Committee member) / Tobias, Evan S (Committee member) / Arizona State University (Publisher)
Created2019
Description
Those who are in or have aged out of foster care, most of whom are queer, Black, brown, and low-income, are represented by social workers, educational advocates, behavioral health specialists, and the mainstream media as “at-risk” for criminal behavior, teen pregnancy, homelessness, and lower levels of educational attainment. Current and former residents of foster care and their experiences must be understood beyond these deficit models in order to restore humanity to and bring about positive change for this population. This project traced the strategies for survival of those in and aged out of foster care in Arizona through artmaking and critical qualitative methods.
Using borderlands theory and medicinal histories, I demonstrated how system involved youth paint a picture of foster care as a dehumanizing borderland creating una cultura mestiza – a hybrid culture that youth learned to navigate as both healers and healing. Additionally, I argued the foster care system is inherently disabling by way of the processual (re)narrativization the system dictates in order to make those in the system legible to the State through the labeling of mental and physical disabilities. Lastly, I explored insights garnered about foster care through ensemble-based devised theatre. I found it is important to have systemic representations of foster care in tandem with embodied experiences of said system. Collage-making served as an accessible mechanism for relationship building, material generation, and material knowledge. I discovered meaningful ways of representing absent presences of system involved people through feeding forward their artistic creations into the devising process. Taken together, I found foster care system involved people survive through art and creativity, connection to people and places, and keen resourcefulness cultivated in the system.
Using borderlands theory and medicinal histories, I demonstrated how system involved youth paint a picture of foster care as a dehumanizing borderland creating una cultura mestiza – a hybrid culture that youth learned to navigate as both healers and healing. Additionally, I argued the foster care system is inherently disabling by way of the processual (re)narrativization the system dictates in order to make those in the system legible to the State through the labeling of mental and physical disabilities. Lastly, I explored insights garnered about foster care through ensemble-based devised theatre. I found it is important to have systemic representations of foster care in tandem with embodied experiences of said system. Collage-making served as an accessible mechanism for relationship building, material generation, and material knowledge. I discovered meaningful ways of representing absent presences of system involved people through feeding forward their artistic creations into the devising process. Taken together, I found foster care system involved people survive through art and creativity, connection to people and places, and keen resourcefulness cultivated in the system.
Contributorsbenge, lizbett (Author) / Vega, Sujey (Thesis advisor) / Hunt, Kristin (Committee member) / Danielson, Marivel (Committee member) / Arizona State University (Publisher)
Created2020