Matching Items (3)
Filtering by
- All Subjects: IRB
- All Subjects: Methodologies
- Creators: Tippeconnic, John
- Creators: Lindor, Keith
Description
In the university setting, when a person wants to conduct research that deals with human subjects, they are required to receive the approval of their Institutional Review Board (IRB). This process takes place to ensure the proposed research is ethical and poses minimal risks to the willing subject. In Indian Country, there is a growing trend where American Indian nations are taking control over regulating research that is conducted within their jurisdictional boundaries.
In my thesis, I discuss the historical background that has led to the IRBs academics are familiar within universities they see today. In addition, I discuss the body of literature that addresses IRBs, human subjects, and the debate on which research should or should not be regulated by universities. I will then, critically analyze the established research protocols that exist in Arizona American Indian tribes. I use Darrell Posey's (1996) idea of Community Controlled Research (CCR) as the framework for my analysis. CCR dictates the people of the community decide the ways in which research is conducted. The purpose of my research is to create recommendations that will assist and inform tribes how to either, strengthen their existing protocols, or create a research protocol that will promotes Community Controlled Research.
In my thesis, I discuss the historical background that has led to the IRBs academics are familiar within universities they see today. In addition, I discuss the body of literature that addresses IRBs, human subjects, and the debate on which research should or should not be regulated by universities. I will then, critically analyze the established research protocols that exist in Arizona American Indian tribes. I use Darrell Posey's (1996) idea of Community Controlled Research (CCR) as the framework for my analysis. CCR dictates the people of the community decide the ways in which research is conducted. The purpose of my research is to create recommendations that will assist and inform tribes how to either, strengthen their existing protocols, or create a research protocol that will promotes Community Controlled Research.
ContributorsTom, Naomi (Author) / Vicenti Carpio, Myla (Thesis advisor) / Killsback, Leo (Committee member) / Tippeconnic, John (Committee member) / Arizona State University (Publisher)
Created2015
Description
This study questioned how the Navajo Nation was going to mitigate and/or adapt
to Global Climate Change. By employing a Diné philosophy based research methodology this study seeks to holistically reframe the lens that the Navajo Nation conceptualizes Global Climate Change. The study uses a comprehensive review of literature that pertained to four research questions. The research questions are: 1) What do Diné oral histories say about climate change? 2) How is the Navajo Nation going to mitigate and adapt to changes to the climate using Western knowledge? 3) How can Diné research methodologies help inform policies that will mitigate and adapt to climate change? 4) What type of actions and frameworks can the Navajo Nation use to generate meaningful policy? The study utilizes a Diné philosophy based analytical framework to focus on how climate change will affect the Diné peoples' A) spirituality, B) economic sustainability, C) family-community, and D) home-environment. The findings are: a) the Navajo spiritual ceremonies are process models that can be used to mitigate and/or adapt to climate change, and they must continue to be practiced. b) The economic development section revealed that economic security is not found solely in resource development, but in the security of ceremonial knowledge. The burden of the Navajo government however, is not to promote labor, but the ability for people to live into old age. c) Because families and communities drive Diné philosophy, Diné families and communities must remember how to treat each other with respect. The collective survival of the Navajo Nation always depended on this teaching. d) The findings of the home-environment section is that Diné have to acknowledge that their lives are fragile in the face of global climate change, and the only way that they can live happily is to trust the power of the stories of the ancestors, and seek to embody the Diné philosophy. This study succeeded as an honest attempt to apply an Indigenous Diné methodology to reframe Global Climate Change into a phenomenon that is survivable.
to Global Climate Change. By employing a Diné philosophy based research methodology this study seeks to holistically reframe the lens that the Navajo Nation conceptualizes Global Climate Change. The study uses a comprehensive review of literature that pertained to four research questions. The research questions are: 1) What do Diné oral histories say about climate change? 2) How is the Navajo Nation going to mitigate and adapt to changes to the climate using Western knowledge? 3) How can Diné research methodologies help inform policies that will mitigate and adapt to climate change? 4) What type of actions and frameworks can the Navajo Nation use to generate meaningful policy? The study utilizes a Diné philosophy based analytical framework to focus on how climate change will affect the Diné peoples' A) spirituality, B) economic sustainability, C) family-community, and D) home-environment. The findings are: a) the Navajo spiritual ceremonies are process models that can be used to mitigate and/or adapt to climate change, and they must continue to be practiced. b) The economic development section revealed that economic security is not found solely in resource development, but in the security of ceremonial knowledge. The burden of the Navajo government however, is not to promote labor, but the ability for people to live into old age. c) Because families and communities drive Diné philosophy, Diné families and communities must remember how to treat each other with respect. The collective survival of the Navajo Nation always depended on this teaching. d) The findings of the home-environment section is that Diné have to acknowledge that their lives are fragile in the face of global climate change, and the only way that they can live happily is to trust the power of the stories of the ancestors, and seek to embody the Diné philosophy. This study succeeded as an honest attempt to apply an Indigenous Diné methodology to reframe Global Climate Change into a phenomenon that is survivable.
ContributorsAtencio, Mario (Author) / Killsback, Leo K (Thesis advisor) / Tippeconnic, John (Committee member) / Lee, Lloyd L. (Committee member) / Arizona State University (Publisher)
Created2015
Description
This paper will chronicle my personal experience in trying to design and initiate a retrospective patient data study to determine the prevalence of Primary Sclerosing Cholangitis (“PSC”) in certain races/ethnic groups in Arizona. This experience will also be the basis for my proposed roadmap for a more successful future study.
My nearly 10 month thesis project of trying to complete a study yielded considerable ‘learning opportunities’ in large part due to my inexperience. I made numerous errors in sequencing tasks, grossly under-scoping elapsed time and hours for other tasks, completely overlooking other critical tasks, and being insensitive to how irrelevant I and my project were to the many professionals whose help I needed to complete the study. Based upon the knowledge I gained through this process, I will describe the design of a future study of retrospective patient data that will assess whether PSC patients in Phoenix, Arizona follow racial/ethnic trends. I chose Phoenix as an ideal location to perform this proposed study because of the diverse racial/ethnic population in the greater Phoenix area. The goal will be to obtain and review 20 years of retrospective patient data from three large hospital groups in Phoenix, identify the races/ethnicities of PSC patients, and quantify the prevalence and incidence of PSC in such races/ethnicities. The lack of IRB uniformity among the subject hospitals/clinics will pose a challenge, but a detailed outline of how to approach the IRB approval process and obtain PSC patient data from each institution is provided.
My nearly 10 month thesis project of trying to complete a study yielded considerable ‘learning opportunities’ in large part due to my inexperience. I made numerous errors in sequencing tasks, grossly under-scoping elapsed time and hours for other tasks, completely overlooking other critical tasks, and being insensitive to how irrelevant I and my project were to the many professionals whose help I needed to complete the study. Based upon the knowledge I gained through this process, I will describe the design of a future study of retrospective patient data that will assess whether PSC patients in Phoenix, Arizona follow racial/ethnic trends. I chose Phoenix as an ideal location to perform this proposed study because of the diverse racial/ethnic population in the greater Phoenix area. The goal will be to obtain and review 20 years of retrospective patient data from three large hospital groups in Phoenix, identify the races/ethnicities of PSC patients, and quantify the prevalence and incidence of PSC in such races/ethnicities. The lack of IRB uniformity among the subject hospitals/clinics will pose a challenge, but a detailed outline of how to approach the IRB approval process and obtain PSC patient data from each institution is provided.
ContributorsBuness, James Gage (Author) / Lindor, Keith (Thesis director) / Ali, Ahmad (Committee member) / School of Life Sciences (Contributor) / Barrett, The Honors College (Contributor)
Created2016-12