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Latino parents of children with feeding disorders completed a survey about their experiences accessing support and the cultural competence of their providers. This work is a follow-up project to a presented American Speech and Hearing Association Conference poster (Stats-Caldwell, Lindsay, Van Vuren, 2017). That project revealed caregivers’ use of

Latino parents of children with feeding disorders completed a survey about their experiences accessing support and the cultural competence of their providers. This work is a follow-up project to a presented American Speech and Hearing Association Conference poster (Stats-Caldwell, Lindsay, Van Vuren, 2017). That project revealed caregivers’ use of social media and indicated an overall perceived lack of support from providers. In the present survey, Latino caregivers identified the resources they consult and rated the level of helpfulness in addition to the types of supports they sought and received from these resources. Results indicate a considerable reliance on pediatricians in both frequency of consultation and helpfulness ratings. No significant difference was seen between the frequency of consultation between pediatricians, speech-language pathologists and other service providers. No significant difference was found in the helpfulness ratings between speech-language pathologists and topic-specific social media pages, nor speech-language pathologists and grandmothers. Participants indicated reliance on social media for informational resources. The influence of social media is discussed. The cultural implications of treating this population are also reviewed.
ContributorsVan Vuren, Katherine Ann (Author) / Azuma, Tamiko (Thesis advisor) / Scherer, Nancy (Thesis advisor) / Helms-Tillery, Kate (Committee member) / Arizona State University (Publisher)
Created2018
Description

Postural Orthostatic Tachycardia Syndrome (POTS) is a chronic health condition in which there is a lack of blood flow to the heart. This can cause dizziness, fatigue, and an increased heart rate (US Department of Health and Human Services, 2017). These symptoms are only a few of many that may

Postural Orthostatic Tachycardia Syndrome (POTS) is a chronic health condition in which there is a lack of blood flow to the heart. This can cause dizziness, fatigue, and an increased heart rate (US Department of Health and Human Services, 2017). These symptoms are only a few of many that may present in patients with POTS, and each patient’s symptoms present with varying intensity. Additionally, there is no set criteria for diagnosing POTS (Olshansky, et al., 2020). Because of this, it is extremely difficult to diagnose patients with POTS and the process can take years. Patients with POTS often seek insight and care from multiple providers which often leads to confusion or no answers. Many times, patients with POTS are diagnosed via a series of procedures that must be done as they face a lifetime with the disease. The lived experiences of patients with POTS are not widely known. It is thus essential to explore this gap in the literature in order to better understand how this disease affects all aspects of a person’s life and inform future research into POTS and develop solutions. This study aims to answer the following research questions: What is the experience of someone with POTS from the onset of symptoms to diagnosis and treatment? What are the attitudes of people going through being diagnosed with POTS?

ContributorsSchmidt, Emma (Author) / Rascon, Aliria (Thesis director) / Kimes, Mckenzie (Committee member) / Barrett, The Honors College (Contributor) / Edson College of Nursing and Health Innovation (Contributor)
Created2023-05