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- Creators: Uriri-Glover, Johannah
- Creators: Infurna, Frank
- Creators: Sanford School of Social and Family Dynamics
Description
Changing Caregivers Attitudes toward dementia study was conducted to assess changes in attitudes of formal caregivers caring for persons with dementia in a palliative care setting. An eight-minute virtual experience activity was delivered to 40 para-professional caregivers of those diagnosed with mild, moderate or severe dementia. The virtual experience consisting of a set of instructions, headphones and different materials, is a quick, effective and efficient way to mimic having some of the stressors those living with Alzheimer's, or other types of dementia, may experience in their day-to-day lives. The purpose of this study was to analyze the effect on caregivers’ emotions and attitudes toward dementia, before and after the virtual experience using a qualitative approach. It is hypothesized that the intervention will educate and instill empathy in the caregivers, overall, improving the delivery of their care in the future. Participants were asked open ended questions before and after the intervention using the virtual experience and four themes emerged: (1) Being more patient, (2) Slowing down, (3) Empathy and (4) Being positive. The findings suggest further education about the disease process is needed to help caregivers understand the actions of dementia related behaviors. Also, education about different strategies to handle some negative behaviors associated with Alzheimer’s or other types of dementia can be done to improve the situation. Overall, the findings showed an increase in empathy and positive words or phrases from the participants, suggesting the simulation experience was an applicable and ethical intervention.
ContributorsPfohl, Marin Elizabeth (Co-author) / Latini, Abigail (Co-author) / Hamilton, Gillian (Thesis director) / Gallagher, Maribeth (Committee member) / Uriri-Glover, Johannah (Committee member) / Edson College of Nursing and Health Innovation (Contributor) / Barrett, The Honors College (Contributor)
Created2020-05
Description
Changing Caregivers Attitudes toward dementia study was conducted to assess changes in attitudes of formal caregivers caring for persons with dementia in a palliative care setting. An eight-minute virtual experience activity was delivered to 40 para-professional caregivers of those diagnosed with mild, moderate or severe dementia. The virtual experience consisting of a set of instructions, headphones and different materials, is a quick, effective and efficient way to mimic having some of the stressors those living with Alzheimer's, or other types of dementia, may experience in their day-to-day lives. The purpose of this study was to analyze the effect on caregivers’ emotions and attitudes toward dementia, before and after the virtual experience using a qualitative approach. It is hypothesized that the intervention will educate and instill empathy in the caregivers, overall, improving the delivery of their care in the future. Participants were asked open ended questions before and after the intervention using the virtual experience and four themes emerged: (1) Being more patient, (2) Slowing down, (3) Empathy and (4) Being positive. The findings suggest further education about the disease process is needed to help caregivers understand the actions of dementia related behaviors. Also, education about different strategies to handle some negative behaviors associated with Alzheimer’s or other types of dementia can be done to improve the situation. Overall, the findings showed an increase in empathy and positive words or phrases from the participants, suggesting the simulation experience was an applicable and ethical intervention.
ContributorsLatini, Abigail Louise (Co-author) / Pfohl, Marin (Co-author) / Hamilton, Gillian (Thesis director) / Gallagher, Maribeth (Committee member) / Uriri-Glover, Johannah (Committee member) / Edson College of Nursing and Health Innovation (Contributor) / Barrett, The Honors College (Contributor)
Created2020-05
Description
This paper will provide a review of the difficulties associated with caregiving for a family member with Alzheimer’s Disease and Related Dementias (ADRD) and the intervention strategies used to improve psychosocial wellbeing of the caregiver. A review of various empirical studies compares different intervention strategies and their accessibility and effect on caregiver mental health. The literature suggests that the most effective treatments are those that are based in cognitive behavioral techniques , teaching caregivers how to recognize and regulate negative emotions that arise and to develop coping strategies for stressful situations involving their loved one with ADRD (Cheng et al., 2018). However, there is currently only a limited amount of research done on the topic of pain recognition and management by caregivers for those with ADRD; future research on this topic is needed to help to develop programs to teach caregivers strategies to help them recognize changes associated with pain in their loved one’s health and wellbeing (Kankkunen & Valimaki, 2014). Future research regarding caregivers for those with ADRD will continue to improve the development of family based support programs based in education for recognition of pain symptoms in patients and cognitive behavioral principles to improve caregiver and patient quality of life (Gitlin et al., 2015).
ContributorsKinnier, Amber (Author) / Coon, David (Thesis director) / Hanish, Laura (Committee member) / Sanford School of Social and Family Dynamics (Contributor) / Barrett, The Honors College (Contributor)
Created2020-05
Description
Dementia is a progressive, neurodegenerative disease for which there is no cure at the present time. Patients with dementia and age-related disorders experience neuropsychiatric symptoms such as delusions, hallucinations, and other difficult to handle behaviors (Peipert et al., 2018). Due to the staggering cost of hiring in-home help or placing their loved ones in a memory care facility, many Americans choose to care for their loved one at home. Unfortunately, this undertaking can impact the caregiver’s emotional and mental health, financial situation, and social life (Peipert et al., 2018). Psychosocial interventions, ranging from social support to therapy, have been shown to be incredibly effective in improving dementia caregiver mental health. One such psychosocial intervention is Cognitive-Behavioral Therapy. Cognitive-Behavioral Therapy (CBT) helps the individual adapt more effective thinking patterns in order to improve their coping skills (Kwon et al., 2017). CBT combines cognitive theory and behavioral theory to explain how our thoughts and feelings directly impact the severity of a situation. In cognitive theory, it is our interpretation of the events that happen to us that is the root of our emotions, not the events themselves. The relationship between our interpretation and our emotions is known as the ABC model (Sorocco & Lauderdale, 2011). In this paper, several relevant studies researching the impacts of CBT on family dementia caregiver stress and burden are assessed and reviewed. A comprehensive, tentative CBT plan for family dementia caregivers is included and proposed.
ContributorsVan Duine, Kelly Nicole (Author) / Infurna, Frank (Thesis director) / Baker, Zach (Committee member) / Barrett, The Honors College (Contributor) / School of Social and Behavioral Sciences (Contributor) / School of International Letters and Cultures (Contributor)
Created2024-05