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- All Subjects: Narrative Medicine
- Creators: Felix, Kaitlyn
- Creators: Mann, Annika
Description
Medical policies, practices, and definitions do not exist solely in the clinical realm; they show up in the lived experiences of patients. This research examines how people with the chronic illness called myalgic encephalomyelitis (ME) define their own illness experiences. They have situated knowledge about their illness onset, search for care, and clinical encounters. Their knowledge complicates and challenges the existing norms in clinical practice and medical discourse, as the experience of searching for care with ME reveals weaknesses in a system that is focused on acute care. Patient narratives reveal institutional patterns that obstruct access to medical care, such as disbelief from clinicians and lack of training in chronic illness protocols. They also reveal patterns in physician behavior that indicate the likelihood of receiving effective care. These patient narratives serve as a basis for continued examination of ME as well as further reconstruction of medical practice and procedure.
ContributorsCutler, Carmen (Author) / Oliverio, Annamaria (Thesis advisor) / Mann, Annika (Thesis advisor) / Behl, Natasha (Committee member) / Arizona State University (Publisher)
Created2019
Description
Students from Student Health Outreach for Wellness (SHOW) partnered with Justa Center in Downtown Phoenix, Arizona to interview 10 elders (age 55+) experiencing homelessness. The approach used was narrative medicine with purposes of 1) demonstrate empathy and awareness for the needs of individuals experiencing homelessness, 2) decrease negative stigmatization surrounding these individuals, and 3) use narrative medicine to promote healing of their traumas. The project's results include 30 social media posts for Instagram and Facebook and an approximately 50 minute film featuring all 10 interviews.
ContributorsHernandez, Alejandro (Author) / Vega, Emilia (Co-author) / Harrell, Liz (Thesis director) / Felix, Kaitlyn (Committee member) / Barrett, The Honors College (Contributor) / School of Life Sciences (Contributor) / College of Health Solutions (Contributor)
Created2022-05
Description
Students from Student Health Outreach for Wellness (SHOW) partnered with Justa Center in Downtown Phoenix, Arizona to interview 10 elders (age 55+) experiencing homelessness. The approach used was narrative medicine with purposes of 1) demonstrate empathy and awareness for the needs of individuals experiencing homelessness, 2) decrease negative stigmatization surrounding these individuals, and 3) use narrative medicine to promote healing of their traumas. The project results include 30 social media posts for Instagram and Facebook and an approximately 50 minute film featuring all 10 interviews.
ContributorsVega, Emilia (Author) / Hernandez, Alex (Co-author) / Harrell, Liz (Thesis director) / Felix, Kaitlyn (Committee member) / Barrett, The Honors College (Contributor) / College of Health Solutions (Contributor)
Created2022-05