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Description
The objective of this study was to examine the quality of life health metrics of parents whose children were diagnosed with Classic Galactosemia and underwent a proactive treatment program. The data analyzed in this study came from the Babble Boot Camp©, which included one control family and nine treatment families.

The objective of this study was to examine the quality of life health metrics of parents whose children were diagnosed with Classic Galactosemia and underwent a proactive treatment program. The data analyzed in this study came from the Babble Boot Camp©, which included one control family and nine treatment families. The Babble Boot Camp© is an innovative intervention program that is implemented via parent training. Child progress and parent quality of life are closely monitored in regular intervals. The purpose of this study was to evaluate if the intervention was successful in terms of child language growth, how the child’s progress affected the parent’s quality of life, and if there were differences in the psychological and physical health of the mothers and fathers. We utilized a variety of questionnaires, specifically the Ages and Stages Questionnaires- 3 (ASQ3) (Squires & Bricker, 2009), Pediatric Quality of Life (PedsQL) Questionnaire (Varni, 1998), Parental Stress Index (PSI-4) (Abidin 2012) and the MacArthur CDI Questionnaire (MBCDI2) (Fenson et al., 2007). The three main findings of this study are: the BBC© treatment protocol showed beneficial gain to the children, the development of the child did affect the parent’s quality of life, and the mother’s physical health was significantly worse than the father’s in terms of health metrics. The significance of this study is to identify preliminary trends in quality of life data of the parents. Clinical implications for the future include investigation of various possible factors driving the improvement of the parent’s quality of life.
ContributorsSchur, Jacklyn (Author) / Peter, Dr. Beate (Thesis director) / Scherer, Nancy (Committee member) / Department of Psychology (Contributor) / College of Health Solutions (Contributor) / Barrett, The Honors College (Contributor)
Created2020-05
Description

The purpose of this study was to evaluate the quality of life in the participating families of the Babble Boot Camp. The Babble Boot Camp provides speech therapy for children with classic galactosemia starting as early as two months old. The child’s speech progress is evaluated along with other metrics

The purpose of this study was to evaluate the quality of life in the participating families of the Babble Boot Camp. The Babble Boot Camp provides speech therapy for children with classic galactosemia starting as early as two months old. The child’s speech progress is evaluated along with other metrics such as parental and child stress levels and quality of life. In this study, the quality of life of the participants in the Babble Boot Camp was evaluated using the Pediatric Quality of Life questionnaire (Varni, 1998). A comparative study was conducted between mothers and fathers, families with children with classic galactosemia, and with typically developing children, and the effects of speech therapy earlier in a child’s life versus later. The questions looked into in this study were if mothers and fathers report different quality of life scores, if there is a correlation between the scores the children have for the quality of life and the scores the parents received for the quality of life, differences in quality of life scores of parents with children with classic galactosemia and parents with typically developing children, and if the quality of life scores of parents and children improve in the Babble Boot Camp. The main results were that mothers report a lower quality of life than fathers, mothers have a stronger correlation with their children in regards to their quality of life scores, parents with children with classic galactosemia have a lower quality of life scores than parents with typically developing children and parents and children who were in the group who received speech therapy from earlier have a higher quality of life scores than the late group.

ContributorsTamhankar, Avani (Author) / Peter, Beate (Thesis director) / Bruce, Laurel (Committee member) / Barrett, The Honors College (Contributor) / School of Life Sciences (Contributor) / School of Human Evolution & Social Change (Contributor)
Created2022-12