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- All Subjects: Midwifery
- All Subjects: Biomedical Technology
- Creators: Ross, Heather
- Member of: Theses and Dissertations
It is in this context that this dissertation, informed by critical disability studies and feminist science and technology studies, examines the understanding and enactment of disability and responsibility in relation to biomedical technologies. I draw from qualitative empirical data from three distinct case studies, each focused on a different biomedical technology: prenatal genetic screening and diagnosis, deep brain stimulation, and do-it-yourself artificial pancreas systems. Analyzing semi-structured interviews and primary documents through an inductive framework that takes up elements of Grounded Theory and hermeneutic phenomenology, this research demonstrates a series of tensions. As disability becomes increasingly associated with discrete biological characteristics and medical professionals claim a growing authority over disabled bodyminds, users of these technologies are caught in a double bind of personal responsibility and epistemic invalidation. Technologies, however, do not occupy either exclusively oppressive or liberatory roles. Rather, they are used with full acknowledgement of their role in perpetuating medical authority and neoliberal paradigms as well as their individual benefit. Experiential and embodied knowledge, particular when in tension with clinical knowledge, is invalidated as a transgression of expert authority. To reject these invalidations, communities cohering around subaltern knowledges emerge in resistance to the mismatched priorities and expectations of medical authority, creating space for alternative disabled imaginaries.
The SolarSPELL Health: Nursing and Midwifery library was created to provide health students and professionals in developing and underprivileged countries with resources for evidence based practice learning, and to help improve women’s health in the country with the highest maternal mortality rate in the world. Our team partnered with local health schools to identify the greatest areas of need. The SolarSPELL team searched for open access materials aimed towards students and professionals in the health field, ensured that this content was relevant to the location and took into account the resources available, curated this content and ensured consistency throughout the process, and lastly packaged the material in a platform that was easy to access and navigate. South Sudan is the newest country in the world, and they lack significant resources, as do all of the countries that SolarSPELL serves. Receiving this library will allow the health students and professionals in South Sudan to utilize the resources they currently have, to provide evidenced based care, both saving and improving lives.