Matching Items (28)

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Language Used when Covering People with Disabilities

Description

News outlets frequently portray people with disabilities as either helpless victims or objects of motivation. Portrayal of people with disabilities has improved over the years, but there is still room

News outlets frequently portray people with disabilities as either helpless victims or objects of motivation. Portrayal of people with disabilities has improved over the years, but there is still room to grow. News outlets tend to make disability the center of the story. A story about a disabled person is primarily about their disability, with their other accomplishments framed by it.

As one example of the victimhood narrative, ABC News used to run a special called My Extreme Affliction as part of 20/20 until 2012. As the name implies, the specials covered people with disabilities, specifically extreme versions. One 2008 episode on Tourette’s syndrome described Tourette’s like it was some sort of demonic possession. The narrator talked about children who were “prisoners in their own bodies” and a family that was at risk of being “torn apart by Tourette’s.” I have Tourette’s syndrome myself, which made ABC’s special especially uncomfortable to watch. When not wringing their metaphorical hands over the “victims” of disability, many news outlets fall into the “supercrip” narrative. They refer to people as “heroes” who “overcome” their disabilities to achieve something that ranges from impressive to utterly mundane. The main emphasis is on the disability rather than the person who has it. These articles then exploit that disability to make readers feel good. As a person with a disability, I am aware that it impacts my life, but it is not the center of my life. The tics from my Tourette’s syndrome made it difficult to speak to people when I was younger, but even then they did not rule me.

Disability coverage, however, is still incredibly important for promoting acceptance and giving people with disabilities a voice. A little over a fifth of adults in the United States have a disability (CDC: 53 million adults in the US live with a disability), so poor coverage means marginalizing or even excluding a large amount of people. Journalists should try to reach their entire audience. The news helps shape public opinion with the stories it features. Therefore, it should provide visibility for people with disabilities in order to increase acceptance. This is a matter of civil rights. People with disabilities deserve fair and accurate representation.

My personal experience with ABC’s Tourette’s special leads me to believe that the media, especially the news, needs to be more responsible in their reporting. Even the name “My Extreme Affliction” paints a poor picture of what to expect. A show that focuses on sensationalist portrayals in pursuit of views further ostracizes people with disabilities. The emphasis should be on a person and not their condition. The National Center for Disability Journalism tells reporters to “Focus on the person you are interviewing, not the disability” (Tips for interviewing people with disabilities). This people-first approach is the way to improve disability coverage: Treat people with disabilities with the same respect as any other minority group.

Contributors

Created

Date Created
  • 2019-05

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Assessing the Economic Prosperity of Persons with Disabilities in American Cities

Description

We seek a comprehensive measurement for the economic prosperity of persons with disabilities. We survey the current literature and identify the major economic indicators used to describe the socioeconomic standing

We seek a comprehensive measurement for the economic prosperity of persons with disabilities. We survey the current literature and identify the major economic indicators used to describe the socioeconomic standing of persons with disabilities. We then develop a methodology for constructing a statistically valid composite index of these indicators, and build this index using data from the 2014 American Community Survey. Finally, we provide context for further use and development of the index and describe an example application of the index in practice.

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Created

Date Created
  • 2017-05

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What Happens When They Become Disabled: An Examination of Adolescent Development While Living With Muscular Dystrophy

Description

Using interpretative phenomenological analysis (IPA), a qualitative research method, combined with quantitative data, this study was designed to examine what it means to be an adolescent living with muscular dystrophy,

Using interpretative phenomenological analysis (IPA), a qualitative research method, combined with quantitative data, this study was designed to examine what it means to be an adolescent living with muscular dystrophy, a life-limiting disease. A sample of twelve adolescents with Duchenne (eight), limb-girdle (two), and friedreich's ataxia (two) as subsets of muscular dystrophy were interviewed one-on-one, as were their parent or adult guardian. Interviews consisted of 16 opened-ended questions for adolescents, and 17 open-ended questions for parents or guardians. Participants also completed a pre-interview online survey consisting of 38 closed-ended questions using a Likert-type scale to gather demographic and treatment information. The focus of these interviews included peer relationships, self-concepts, and family dynamics in the lives of adolescents with muscular dystrophy. Each of these categories was examined in relation to participants' processes of making meaning of their experiences. It was discovered that parent and child attitudes towards disability run parallel, whether that be positive, negative, or neutral in regards to quality of life with a disability. It was also determined that at least one parent must be a stay-at-home job or be able to work from home in order to be the caliber of caregiver required for their child. Adolescents in this study all had a strong support system in place, with the predominant support system being their family. Self-reports on whether or not adolescents worried about how their muscular dystrophy affected their families were split. Families planned activities within their family unit by utilizing a complete activity inclusion approach, separate opportunities for siblings approach, or activity elimination approach. Regardless of level of family support, it was found that the majority of adolescents in this sample try not to think about muscular dystrophy, or have neutral feelings towards these thoughts. They also thought that people who do not have muscular dystrophy do not know what it is like to live with this disease, and felt neutrally towards the way that they look. Medically speaking, the majority of adolescents reported feeling neutral towards the support that they receive from their medical providers, and that their providers do not talk directly to them but rather to the rest of their family or caregiver instead. These adolescents could not manage their own medical needs and their medical appointments were made by a parent or other type of caregiver. A strong misperception that a physical disability also signals the presence of an intellectual disability when at school was evident. Adolescents were also quick to point out the social stigma that comes with having the assistance of an aid at school with able-bodied peers. However, a small few, particularly those younger in age, reported a lack of peer stigma, and even the social benefit of having an adult friend at school. While the Muscular Dystrophy Association is trusted in coordinating patient care, their treatment advisements are perceived to be outdated, and Goodwill Ambassador program considered manipulative by patients. Application to the Muscular Dystrophy Association (MDA) Transitions Program are named so that the organization formerly relied upon most to serve these families and who has a program designed to serve this exact population can benefit from them. With zero families interviewed having heard of or utilized this program, a clear change in their programs and practices need to take place. The information gathered from this study provides insight for developing and to guide new programs to assist this population in making the difference the MDA Transitions Program aims to do.

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Agent

Created

Date Created
  • 2016-12

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Beyond Books: The Importance of Inclusive and Accessible Library Spaces

Description

Libraries have historical and contemporary importance as public spaces that serve a purpose beyond storing books. In our thesis project, we wanted to ensure that the ASU Library was fulfilling

Libraries have historical and contemporary importance as public spaces that serve a purpose beyond storing books. In our thesis project, we wanted to ensure that the ASU Library was fulfilling this role for our student community. Based on a survey of 136 members of the Arizona State University community regarding accessibility of the Libraries, the results found that the ASU Library system could benefit from more accessible and digital content and programming. In response to our findings, we created a digital book display which highlighted resources about critical disability studies, the importance of community spaces and libraries in particular, as well as information about universal design. This book display serves as an example of what the future of book displays could be and how to create inclusive spaces in the university Library system.

"Access the project here: https://libguides.asu.edu/BeyondBooks"

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Created

Date Created
  • 2020-12

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Optimal Prosthetic Development for the Good of all Amputees

Description

This paper emphasizes how vital prosthetic devices are as tools for both congenital and acquired amputees in order to maximize this population's level of societal productivity, but several issues exist

This paper emphasizes how vital prosthetic devices are as tools for both congenital and acquired amputees in order to maximize this population's level of societal productivity, but several issues exist with the current technological focus of development by the prosthetic industry that creates unnecessary hurdles that amputees must surpass in order to truly benefit from these tools. The first major issue is that these devices are not readily available to all amputees. The astronomical cost of most prosthetic devices is a variable that restricts low income amputee populations from obtaining these vital tools regardless of their level of need, thus highlighting the fact that amputees who are not financially stable are not supported in a fashion that is conducive to their success. Also, cost greatly affects children who suffer from a missing appendage due to the fact that they are in constant need of prosthetic replacement because of physical growth and development. Another issue with the current focus of the prosthetic industry is that it focuses on acquired amputees because this population is much larger in comparison to congenital amputees and thus more lucrative. Congenital amputees' particular needs are often entirely ignored in terms of prosthetic innovation. Finally, low daily utilization is a major issue amongst the amputee population. Several variables exist with the use of prosthetic devices that cause many amputees to decide against the utilization of these tools, like difficulty of use and lack of comfort. This paper will provide solutions to cost, discrimination, issues in development, and daily utilization by emphasizing on how lowering the cost through alternative designs and materials, transitioning the focus of technological development onto the entire amputee population rather than targeting the most lucrative group, and advancing the design in a fashion to which promotes daily utilization will provide the largest level of societal support, so that the amputee population as a whole can maximize their level of productivity in a manner that will allow this group to conquer the hardships that are introduced into their lives due to a missing appendage.

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Created

Date Created
  • 2018-05

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The Effect of El Niño Southern Oscillation Phase on Arizona Severe Weather

Description

The El Niño Southern Oscillation (ENSO) consists of a linkage between changes in sea-surface temperatures and atmospheric pressure across the Tropical Pacific. ENSO encompasses three phases: neutral events, warm/El Niño

The El Niño Southern Oscillation (ENSO) consists of a linkage between changes in sea-surface temperatures and atmospheric pressure across the Tropical Pacific. ENSO encompasses three phases: neutral events, warm/El Niño events in which sea-surface temperatures are warmer-than-normal and the pressure gradient decreases across the Equatorial Pacific, and cold/La Niña events in which Tropical Pacific sea-surface temperatures are cooler-than-normal and the pressure gradient increases. Previous studies have determined a connection between variations in ENSO phase and weather patterns across the globe, focusing particularly on surface temperature and precipitation patterns in the United States. However, little research exists that attempts to link changes in ENSO phase with severe weather in Arizona. Therefore, in this study, I analyzed how variations in ENSO phase affect the frequency, intensity, and spatial distribution of four types of severe weather from 1959 to 2016 in Arizona, including a) tornado events, b) severe thunderstorm wind events, c) hail events, and d) heavy rain and flash flood events. I collected data on the Oceanic Niño Index (ONI), a measure of ENSO, as well as storm reports for each severe weather phenomenon dating back to 1959. Then, I analyzed the frequency of each Arizona severe weather event type within each of the twelve annual months and over the entire study period. I also analyzed mean intensity values (Fujita/Enhanced Fujita Scale rating, path width, and path length for tornadoes; hail diameter in millimeters for hail; and wind gust speed for severe thunderstorm wind events) for each severe weather phenomenon, excluding the heavy rain and flash flood events. Finally, I used the Mean Center and Directional Distribution tools in ArcGIS to determine variations in the spatial distribution and mean centers between each ENSO phase for each severe weather event type. I found that ENSO phase, particularly La Niña, does impact the frequency and intensity of tornadoes, hail, thunderstorm wind, and heavy rain/flash flood events in Arizona. However, it appears that ENSO does not affect the spatial distribution of these Arizona severe weather phenomena. These findings attempt to fill in the gap in the literature and could help meteorologists better forecast changes in Arizona severe weather, in turn allowing Arizonans to better prepare for and mitigate the effects of severe weather across the state.

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Created

Date Created
  • 2018-05

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Elderly People and Individuals with Disabilities: An Analysis of the Civil Right to Mobility

Description

Abstract Older adults and people with disabilities are two unique populations, though they intersect in their need for mobility options that are often not met by traditional transportation services. There

Abstract Older adults and people with disabilities are two unique populations, though they intersect in their need for mobility options that are often not met by traditional transportation services. There is consensus that the government should provide assistance for older adults and people with disabilities to achieve and maintain independence. However, the challenge lies in addressing the many forms of mobility inequity. Population projections for the twenty-first century have sparked interest in the rights of these two populations. As the population of the United States of America ages, supporting the mobility of seniors and individuals with disabilities will become imperative to maintaining their quality of life. One existing federal grant, Section 5310: Enhanced Mobility for Seniors and Individuals with Disabilities (49 U.S.C. 5310) provides formula funding for services that provide transportation options to older adults and people with disabilities. While the 5310 program provides crucial funding to non-profits and government agencies to support mobility options for older adults and people with disabilities, it does not address the full scope of mobility issues faced by these two communities. This thesis project provides a thorough analysis of this grant from the federal legislation it is founded on, to the local administration of this grant as applied by the Maricopa Association of Governments (MAG). Finally, this thesis looks at emerging technology with the potential to revolutionize mobility, along with sobering historical context of the barriers faced older adults and people with disabilities.

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Agent

Created

Date Created
  • 2018-05

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Manifesting Disability to Preserve the Sanctity of Human Life

Description

Abstract As humans, we can instill a different mindset when it comes to our bodies and suffering. Using Antonin Artuad's contributions to the theater in examining the role and consequences

Abstract As humans, we can instill a different mindset when it comes to our bodies and suffering. Using Antonin Artuad's contributions to the theater in examining the role and consequences of dehumanization, disability can be reimagined. There is a need for a "true theater" of "cruelty," not in the literal sense, but in a metaphorical sense whereby the essence of being alive is revealed through the exaggerated gestures of the true theater, or "poetry in space." Disability is the embodiment of chaos, in the way it manifests the human condition through the reality of having a body, and as the embodiment of conflict between ostensible symbols of socio-cultural "order," and the sanctity of human life. If this chaos is destructive to the socio-cultural, symbolic order but poetic in space, then reimagining disability in order to understand it can serve to create true compassion in the human experience. While "order" in the socio-cultural sense produces hegemony via a hierarchy of symbols and consequences, chaos serves as the innate poetry of the body: inspirational, pure and valuable. It is oriented towards that essence most urgent to humankind: the raw experience of the physical body, despite its continued existence in a confining, conflicting world. Hegemony, generated by the social symbolic order (SSO) attempts to create order out of perceived chaos and claims that suffering in the body is detrimental to life, manifesting violence towards disabled people because they are viewed as suffering and limited. Hegemony creates the conditions whereby the disabled are susceptible into thinking their own lives lack value.

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Agent

Created

Date Created
  • 2018-05

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Creating Safe Library Spaces for Children with Special Needs

Description

Equal access to community facilities and resources is vital to the educational development of children. Yet, many times community programs and activities are not appropriately adapted for children with disabilities.

Equal access to community facilities and resources is vital to the educational development of children. Yet, many times community programs and activities are not appropriately adapted for children with disabilities. This thesis project explored how public library spaces and programs can be adapted to become more accessible for children with special needs. Forty-one library youth staff members were surveyed to understand their training needs and inform the development of a professional workshop. In partnership, Arizona State University and Scottsdale Public Library System created a professional development training to educate library youth staff on cultural responsivity. One component of the training, "Creating Safe Library Spaces for Children with Special Needs," was developed to teach library youth staff about techniques for ensuring equal educational opportunities for all children in libraries. Sixteen library staff members participated in the training and were asked to complete a post-workshop survey evaluating their satisfaction and perceived usefulness of the training.

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Created

Date Created
  • 2016-12

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Process Evaluation of Employee Implementation of Action Programs

Description

The Community Action Research Experiences program integrates the research and teaching mission of Arizona State University by providing services to the community by fostering professional and leadership development of students.

The Community Action Research Experiences program integrates the research and teaching mission of Arizona State University by providing services to the community by fostering professional and leadership development of students. It is hoped that the results of the collaborations with CARE will serve to further an organization's goals and effectiveness. VALLEYLIFE (VL) is a non-profit organization striving to help people with disabilities. VL develops Action Programs for each of its clients, whom they call members, to improve their independent or social skills. Examples of programs that members may work on include tasks such as computer training, visual arts, or writing. VALLEYLIFE lacked the data to evaluate if the developed and implemented Action Programs are properly carried out by the staff in ways that are beneficial to members. Given the problem, this research project sought to conduct a process evaluation of the staff regarding their implementation of the Action Programs. This involved observations of employee-member interactions in performing the Action Programs and an interview of staff measuring their preparedness and confidence in performing the program and their feelings of the programs and how things are run. This research provided the following implications to VALLEYLIFE. VL might consider performing periodic observations and reviews of the program implementation to monitor quality. VL may consider involving staff in program development and revision to create programs that better serve members. VL may consider generating ideas for how they may cooperate when a peer is struggling to keep up with events that happen through the day in the interest of better serving the members. Overall, employees are doing well as they are efficient in carrying out the written programs during program time. They are comfortable with what they are doing, use time effectively, and do their best to help the members. There is always room for improvement however and by considering some of the implications mentioned, VALLEYLIFE and their employees may be able to take action that may hold potential for further improvements in effectiveness.

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Agent

Created

Date Created
  • 2013-05