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  2. Embryo Project Encyclopedia
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  4. Havasupai Tribe v. the Arizona Board of Regents (2008)
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Havasupai Tribe v. the Arizona Board of Regents (2008)

Full metadata

Title
Havasupai Tribe v. the Arizona Board of Regents (2008)
Description

In 2004, the Havasupai Tribe filed a lawsuit against the Arizona Board of Regents and several Arizona State University professors after discovering that the scientists had used blood samples from members of the tribe for research on type 2 diabetes in unrelated genetic studies. The study participants were not aware the researchers were using their samples in the study of highly taboo topics in Havasupai culture, such as schizophrenia, ethnic migration, and population inbreeding. The Havasupai Tribe alleged that the collection of samples constituted a violation of informed consent, or an individual's agreement to participate after receiving an accurate and comprehensive explanation of the intended usage of their genetic material. The lawsuit Havasupai Tribe v. Arizona State University Board of Regents reached a settlement in April 2010 that included monetary compensation from Arizona State University and the return of the samples to the Havasupai community. Although the case did not set an official legal precedent, it sparked discourse regarding informed consent and ethical research practices when conducting genetic research with Native American communities and other vulnerable populations.

Date Created
2025-08-10
Contributors
  • Zawilak, Tea (Author)
  • Santora, Emily (Editor)
Topical Subject
  • Informed Consent
  • Ethics, Research
  • Informed consent (Medical law)
  • Research--Moral and ethical aspects
  • Indians of North America
  • Medical Ethics
Name Subject
  • Martin, John
  • Markow, Therese
  • Tilousi, Carletta
  • Tsosie, Rebecca
Keywords
  • Law
Resource Type
Text
Primary Member of
Embryo Project Encyclopedia Articles
Peer-reviewed
Open Access
No
Handle
https://hdl.handle.net/2286/R.2.N.202543
System Created
  • 2025-09-08 11:24:09
System Modified
  • 2025-09-09 06:27:49
  •     
  • 1 year ago
Additional Formats
  • OAI Dublin Core
  • MODS XML

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