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Barrett, The Honors College at Arizona State University proudly showcases the work of undergraduate honors students by sharing this collection exclusively with the ASU community.

Barrett accepts high performing, academically engaged undergraduate students and works with them in collaboration with all of the other academic units at Arizona State University. All Barrett students complete a thesis or creative project which is an opportunity to explore an intellectual interest and produce an original piece of scholarly research. The thesis or creative project is supervised and defended in front of a faculty committee. Students are able to engage with professors who are nationally recognized in their fields and committed to working with honors students. Completing a Barrett thesis or creative project is an opportunity for undergraduate honors students to contribute to the ASU academic community in a meaningful way.

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Exposing Women's Experiences with Von Willebrand Disease: A Case Study of Online Support Groups

Description
This research explores the unique and complicated experiences of women living with Von Willebrand Disease (VWD). VWD occurs with quantitative or qualitative deficiencies in Von Willebrand Factor—a key protein involved in blood clotting. While VWD affects men and women, women often suffer harsher complications because of menstruation, childbirth, and other…

This research explores the unique and complicated experiences of women living with Von Willebrand Disease (VWD). VWD occurs with quantitative or qualitative deficiencies in Von Willebrand Factor—a key protein involved in blood clotting. While VWD affects men and women, women often suffer harsher complications because of menstruation, childbirth, and other women’s health issues. Using online VWD support groups, this research recognizes and attempts to understand the common experiences of women with VWD. Availability of Care, Motherhood, Community and Sisterhood, Girlhood, Sexual Health and Reproductive Health, and Stigma were the six common themes found within these online support groups. Women in these groups corroborate the current understandings of women-specific experiences with VWD: particularly, heavy menstruation, postpartum hemorrhaging, diagnostic difficulties, treatment complications, and implications of an overall lower quality of life. However, these women also report VWD-induced complications with sexual health, mental health, care when trying to conceive, misinterpretations of bruising, constraints on healthcare availability, and the stigma associated with heavy menstruation. These findings address gaps in the literature and identify new areas for further research. Ideally, these conclusions will provide educational materials for healthcare professionals, government legislatures, and families to better support women and girls with VWD.
Keywords: Von Willebrand disease, women’s health, sexual health, mental health, reproductive health, phenomenology, and stigma
ContributorsReynolds, Aubrey Bryanna (Author) / Haskin, Jennifer (Thesis director) / Gemelli, Marcella (Committee member) / School of Social Transformation (Contributor) / School of Life Sciences (Contributor) / Barrett, The Honors College (Contributor)
Created2016-12