Matching Items (2)
Description
The death of a parent or sibling for youth under age 18 is life-altering and necessitates support and opportunities for expressing grief. Scholarship from psychology and medical disciplines often equates youthful grieving as a disease to be cured rather than a natural process to be experienced. Stage-based grief models explain adults coping with loss of loved ones by working through a series of discrete phases mostly tied to deficit-based emotions such as anger or depression. Progressive grief models have been emerging throughout the past 20 years in response to stage-based models; however these models tend to highlight deficit-based emotions and are applied to youth as afterthoughts. Thus, there is a noticeable absence of research exploring positive or strength-based emotions in adolescent grief from a communicative, youth-centered perspective. A communicative approach to exploring adolescent grief narratives offers a practical yet pliable theoretical lens for interpreting meaning from mourning. Using qualitative methods, I conducted full participant research as a volunteer with Comfort Zone Camp, a national organization sponsoring weekend-long grief camps for youth. I engaged in participant observation while volunteering to explore the communicative processes of 26 grieving adolescents and also conducted post-camp follow-up interviews with youth, parents, and adult volunteers. Analysis was based on 192 field work hours, 11 interview hours, artifacts, and camp documents. Findings of the dissertation indicate grieving adolescents use communicative processes, including sharing emotional pieces, co-authoring loss, and naming hurt, to perform a range of emotions. Along with deficit-based emotions, grieving adolescents perform strength-based emotions, including confidence, forgiveness, happiness, deservingness, hope, gratitude, resilience, love, and compassion. Evidence also supports that grieving campers performed compassion individually and in groups. Theoretically, this dissertation expands on existing grief theory by demonstrating that adolescents communicate strength-based emotions in grief, captured visually in the Concert of Emotions model. This study expands on compassion theory by exploring implications of collective compassion expressions. Specifically, this dissertation offers the co-performing sub-process to account for collective compassion extending past compassion models that focus on individual expressions. Practically, this research yields new understanding into how grieving adolescents constitute themselves as compassionate, helpful contributors as they face loss.
ContributorsClark, Louise Elizabeth (Author) / Tracy, Sarah J. (Thesis advisor) / Corey, Frederick (Committee member) / Miller, Katherine I (Committee member) / Swadener, Beth Blue (Committee member) / Arizona State University (Publisher)
Created2015
Description
Chronic illness can be a stressful experience that requires coping and support. In the last twenty years, Shared Medical Appointments (SMAs) were developed in U.S. healthcare as a response to the rising rates and challenges of chronic disease management. Due to the infancy of the SMA model, however, little is known or understood about the benefits of group medical care for patients. To date, scholars have not explored or systematically observed the communicative aspects of the SMA model. Communal coping, a theoretical framework that foregrounds group interaction and communication, offers a pragmatic lens for exploring how patients collectively cope with the stressors of chronic illness in the context of SMAs. Using qualitative methods, I conducted participant observation of SMAs at a Veterans Affairs hospital to analyze the communicative, transactional nature of communal coping as it unfolded among heart failure patients, family members, and providers in context. I also conducted interviews with SMA attendees. Analysis is based on 56 hours of fieldwork and 14 hours of interviews. Findings of this dissertation revealed group members who attended heart failure SMAs engaged in communal coping to manage the stressors of chronic illness. Group members moved through four primary phases of the communal coping process: (1) establish a communal coping orientation; (2) discuss shared stressors; (3) engage in cooperative action; and (4) practice communal reflexivity. Findings suggest patients become empowered by group interaction during SMAs as they move through each phase of the communal coping process. This dissertation also highlights various communicative strategies providers' use during SMAs to facilitate communal coping and group interaction. Theoretically, this dissertation expands upon existing knowledge of communal coping by exploring how individuals embody and socially construct the communal coping process. Specifically, this dissertation extends past models of communal coping with the addition of the communal reflexivity phase and through conceptualizing communal coping as a facilitated process of empowerment. Pragmatically, this research also offers insight to the benefits patients derive from attending SMAs, such as reduced feelings of stigma and isolation and improved motivation.
ContributorsHoffman, Trisha K (Author) / Miller, Katherine I (Thesis advisor) / Tracy, Sarah J. (Thesis advisor) / Lederman, Linda C (Committee member) / Dev, Sandesh (Committee member) / Arizona State University (Publisher)
Created2015