Young adults with type one diabetes mellitus (T1DM) face unique challenges in managing their chronic disease. While simultaneously navigating major life transitions and becoming fully responsible for their diabetes-self management behaviors (DSMB), social support can be an integral part of disease management. Many young adults enroll in college where student organizations are prevalent including diabetes related social groups on some campuses, which provide a rich source of social support for students with diabetes as they transition to greater independence in diabetes management. This study used descriptive analysis and personal network analysis (PNA) to investigate which aspects of being a part of a diabetes related social group and personal networks, in general, are pertinent to successful diabetes management, measured by a Diabetes Self-Management Questionnaire (DSMQ) among 52 young adults with T1DM. The majority of respondents indicated that since being a part of College Diabetes Network (CDN) or another diabetes-related social group, they increased time spent paying attention to, and felt more empowered to make changes to their diabetes management routine, and they were able to generally take better care of their diabetes. Half of respondents noticed their health improved since joining, and over half felt less burdened by their diabetes. Though no personal network measures were highly correlated with higher Diabetes Self-Management Scores, the degree to which health matters were discussed within their personal network was the most associated personal network measure. Our findings help contextualize the ways in which young adults’ DSMB are influenced by participation in diabetes- related social groups, as well as introduce the use of personal network analysis in gauging important aspects of social capital and support in young adults with chronic disease.
For those living lives devoted to taking care of others, it can be difficult to remember to take care of themselves. This thesis project is a review of quantitative and qualitative literature pertaining to self-care for the caregivers of Alzheimer's and dementia patients. Three nursing diagnoses and related nursing interventions were created using data from the evidence-based literature. With the proper knowledge and assistance, caregivers can better prepare for the future and participate in health-promoting self-care activities which may improve their quality of life.
It is often a passion for caring for others that drives people towards the profession of nursing in the first place. At some point, however, this desire to care for other people takes over, and nurses soon forget how to properly care for themselves. It was asked: If students are better prepared with and more encouraged to use healthy coping mechanisms and integrative modalities to deal with their daily lives, are they more likely to continue to care for themselves properly as time goes on? Ample research was conducted illuminating the prevalence of this worldwide problem and highlighting potential solutions noted by credible sources. An initiative was formed with the goal of improving the self care practices of nursing students at Arizona State University (ASU) with the greater intent of promoting a healthier work environment as these students advance into their future careers. The Arizona Student Chapter of the American Holistic Nurses Association (AHNA) at ASU was formed, and it serves as the vessel for this self-care health-care mission.
Activist burnout theory has produced minimal but meaningful literature and research that explores the dynamics of burnout culture, movement in-fighting, marginalized identities, and dimensions of burnout symptoms. Black feminist visionaries and writers such as Audre Lorde and bell hooks have developed theories of love, self-care and community as central to resistance that have informed my research approach. Thus, my study aims to investigate activist burnout from a perspective that marries popular activist burnout theory with these frameworks of self-care and community. I conducted a survey of Arizona State University student organizers and activists (N=34) to address the following research questions: What are the causes and symptoms of burnout for Arizona State University activists and organizers? How have self-care and community played a role in their work and countered burnout? Can working conceptions of self-care and community serve as resistance in ways that feel meaningful to activists? The survey was broken into three dimensions: “Demographics and Experience,” “Burnout,” and “Self-Care and Community.” The results reinforced prior findings on established toxic cultures and burnout symptoms but introduced complications to working theories, such as the connections between cycles of burnout and the cyclical nature of electoral politics along with the roles of chronic and mental illness. Respondents largely demonstrated conceptions of self-care and community as resistance but also demonstrated personal and professional barriers to putting these conceptions into practice.
This qualitative descriptive study described caregiver recognition of personal and social contextual resources guiding purposeful participation in self-care and well-being. This research builds on health empowerment theory, which conceptualizes health empowerment as an inherent, relational and ongoing process, expressive of health patterning of well-being (Shearer, 2009). By 2060, Americans 65 years and older will number nearly 98 million, more than double that in 2013. The number of older adults aged 85 and older will double from 6 million in 2003, to 14.6 million by 2040 (Health & Human Services, 2014). Sixty-five million adults serve as informal caregivers, many themselves suffering from chronic conditions (National Alliance for Caregiving & AARP, 2009). Current research has examined the burden of caregiving, but little is known about caregiver strengths and resources that foster personal self-care and well-being. Twenty-one older adult informal caregivers participated in focus groups or individual interviews. Length of time as caregivers ranged from one year to more than ten years; 24% of the participants were men. Seventy-six percent of the participants reported having one or more chronic condition. Themes generated from qualitative content analysis provided a basis for validating and extending the health empowerment theory among older adult informal caregivers. Across participants, empowerment reflected recognition of strengths and resources, as well as growth consistent with valued goals facilitating new health patterns and well-being. The health empowerment theory perspective provided a relevant basis for theory-based intervention focused on promoting strengths, abilities and potential among older adults, limiting vulnerability to diminished health and well-being.