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Medical policies, practices, and definitions do not exist solely in the clinical realm; they show up in the lived experiences of patients. This research examines how people with the chronic

Medical policies, practices, and definitions do not exist solely in the clinical realm; they show up in the lived experiences of patients. This research examines how people with the chronic illness called myalgic encephalomyelitis (ME) define their own illness experiences. They have situated knowledge about their illness onset, search for care, and clinical encounters. Their knowledge complicates and challenges the existing norms in clinical practice and medical discourse, as the experience of searching for care with ME reveals weaknesses in a system that is focused on acute care.

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Date Created
  • 2019
Resource Type
  • Text
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    Note
    • Partial requirement for: M.A., Arizona State University, 2019
      Note type
      thesis
    • Includes bibliographical references (comprehensive references pages 152-159)
      Note type
      bibliography
    • Field of study: Social Justice and Human Rights

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    Statement of Responsibility

    by Carmen Cutler

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