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Patient narratives of myalgic encephalomyelitis: situated knowledge for re/constructing healthcare

Description
Medical policies, practices, and definitions do not exist solely in the clinical realm; they show up in the lived experiences of patients. This research examines how people with the chronic illness called myalgic encephalomyelitis (ME) define their own illness experiences. They have situated knowledge about their illness onset, search for…

Medical policies, practices, and definitions do not exist solely in the clinical realm; they show up in the lived experiences of patients. This research examines how people with the chronic illness called myalgic encephalomyelitis (ME) define their own illness experiences. They have situated knowledge about their illness onset, search for care, and clinical encounters. Their knowledge complicates and challenges the existing norms in clinical practice and medical discourse, as the experience of searching for care with ME reveals weaknesses in a system that is focused on acute care. Patient narratives reveal institutional patterns that obstruct access to medical care, such as disbelief from clinicians and lack of training in chronic illness protocols. They also reveal patterns in physician behavior that indicate the likelihood of receiving effective care. These patient narratives serve as a basis for continued examination of ME as well as further reconstruction of medical practice and procedure.
ContributorsCutler, Carmen (Author) / Oliverio, Annamaria (Thesis advisor) / Mann, Annika (Thesis advisor) / Behl, Natasha (Committee member) / Arizona State University (Publisher)
Created2019
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Contextualizing Deaf Education in Kenya

Description
In Kenya, there is a growing population of deaf individuals, creating a higher demand for inclusion and acceptance of deafness, as well as resources to best educate deaf youths. Despite the increasing presence of deaf individuals in Kenya, a hegemonic view of deafness as a form of deviance persists and…

In Kenya, there is a growing population of deaf individuals, creating a higher demand for inclusion and acceptance of deafness, as well as resources to best educate deaf youths. Despite the increasing presence of deaf individuals in Kenya, a hegemonic view of deafness as a form of deviance persists and fosters stigmatizing beliefs towards the deaf community. The hegemonic view of deafness as a form of deviance permeates into not only societal and familial acceptance of deaf individuals, but educational, medical, and political institutions, as well, and is unsustainable and destructive towards the advancement of Deaf culture in Kenya. This thesis examines the context of deaf education in Kenya, currently and historically, through a critical and theoretical examination of research, monitoring use of a resource-based website, and receiving feedback from local topic experts.
ContributorsLangerud, Courtney (Author) / Swadener, Beth Blue (Thesis advisor) / Oliverio, Annamaria (Committee member) / Sandlin, Jennifer (Committee member) / Arizona State University (Publisher)
Created2022