Diabetes education has shown to improve diabetes health markers but there is a need for it to be more accessible Diabetes education in the form of Diabetes Self Education and Management (DSMES) could potentially utilize IT technologies, which have shown promise as a more accessible way to access healthcare and manage health. However, both these methods have not been optimized for the diverse population in the US. In particular, Chinese Americans are a growing minority group in America whose health needs such as diabetes type 2 are growing. As a cultural group, Chinese Americans have cultural characteristics that have been identified in the literature, which should be accounted for in the design of a technology-enabled DSMES program. This qualitative study aims to understand what ways Chinese Americans with type 2 diabetes are learning about and managing diabetes, as well as their technology usage. Themes such as cultural food importance, family roles, information acquisition, and attitudes and motivation emerged. Themes motivated the design implications and recommendations such as creating a more specified, culturally tailored Chinese food menu, integrated family features, and trackers with increased feedback. More research should be conducted to test the effectiveness of including these features in a technology-enabled DSMES program.
Young adults with type one diabetes mellitus (T1DM) face unique challenges in managing their chronic disease. While simultaneously navigating major life transitions and becoming fully responsible for their diabetes-self management behaviors (DSMB), social support can be an integral part of disease management. Many young adults enroll in college where student organizations are prevalent including diabetes related social groups on some campuses, which provide a rich source of social support for students with diabetes as they transition to greater independence in diabetes management. This study used descriptive analysis and personal network analysis (PNA) to investigate which aspects of being a part of a diabetes related social group and personal networks, in general, are pertinent to successful diabetes management, measured by a Diabetes Self-Management Questionnaire (DSMQ) among 52 young adults with T1DM. The majority of respondents indicated that since being a part of College Diabetes Network (CDN) or another diabetes-related social group, they increased time spent paying attention to, and felt more empowered to make changes to their diabetes management routine, and they were able to generally take better care of their diabetes. Half of respondents noticed their health improved since joining, and over half felt less burdened by their diabetes. Though no personal network measures were highly correlated with higher Diabetes Self-Management Scores, the degree to which health matters were discussed within their personal network was the most associated personal network measure. Our findings help contextualize the ways in which young adults’ DSMB are influenced by participation in diabetes- related social groups, as well as introduce the use of personal network analysis in gauging important aspects of social capital and support in young adults with chronic disease.