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Developing and Pilot Testing Digital Storytelling Interventions to Promote HPV Vaccinations among Vietnamese American Adolescents

Description
Significance Background: Human papilloma virus (HPV) is the most common sexually transmitted infection, affecting 79 million Americans today and an additional 14 million Americans becoming infected with HPV each year. HPV infection may lead to the development of genital warts and several types of cancers including both cervical and oropharyngeal…

Significance Background: Human papilloma virus (HPV) is the most common sexually transmitted infection, affecting 79 million Americans today and an additional 14 million Americans becoming infected with HPV each year. HPV infection may lead to the development of genital warts and several types of cancers including both cervical and oropharyngeal cancers. The promotion of currently available HPV vaccines is important to prevent HPV transmission and reduce the prevalence of the comorbidities associated with infection. Promotion to Vietnamese-Americans in particular is important because of the increased rates of cervical cancers seen in this population. As Vietnamese-American mothers often act as the primary healthcare decision maker for their children, they were chosen as the target population for this intervention. Purpose: This study aims to (1) develop personal digital stories about HPV and HPV vaccination among Vietnamese women with adolescent children who are vaccinated against HPV; and (2) share these stories with a group of Vietnamese American mothers and assess the effect of the stories in changing the attitudes, beliefs, and intention to vaccinate for HPV. Methods: This study used a two-step process to design, implement, and evaluate digital stories to improve Vietnamese mothers' attitudes, beliefs, and intention to vaccinate their adolescent children against HPV. The first step was a formative research design to develop the digital stories. The second step was quasi-experimental with a pre and posttest design to evaluate the effect of the stories. Results: The first phase has produced two digital stories which will be screened recruitment has been completed for phase two. Content analysis showed the importance of community resources, the desire to protect children, a history of familial and/or personal cancer, concerns about side effects, and the influence of healthcare providers as themes in both stories. Recruitment efforts are underway to recruit eligible Vietnamese mothers to assess the effect of these stories. Data collection is ongoing. Conclusions and lessons learned: The project has yielded two digital stories and recruitment for phase two is underway. This project has been successful in obtaining IRB approval, recruiting phase one participants, holding a digital storytelling workshop, designing the phase two survey, and beginning data collection efforts. The phase two recruitment has been challenging and will necessitate a change in strategy to find participants.
ContributorsMartin, Kieran John Patrick (Author) / Chen, Angela Chia-Chen (Thesis director) / Larkey, Linda (Committee member) / Arizona State University. College of Nursing & Healthcare Innovation (Contributor) / Barrett, The Honors College (Contributor)
Created2017-05

My Sister's Monster: A Story of Hardship and Healing

Description
At least 30 million people in the United States suffer from an eating disorder during their lifetime (National Association of Anorexia Nervosa and Associated Disorders, 2016). The Centers for Disease Control and Prevention (CDC) defines anorexia nervosa as a disorder where the person strives to maintain a lower than normal…

At least 30 million people in the United States suffer from an eating disorder during their lifetime (National Association of Anorexia Nervosa and Associated Disorders, 2016). The Centers for Disease Control and Prevention (CDC) defines anorexia nervosa as a disorder where the person strives to maintain a lower than normal body weight through restriction and starvation (CDC MMWR, 1996). People with this disorder constantly have to control and count everything they eat (Mayo Clinic, 2016). For my creative project, I documented my sister's struggles through Digital Storytelling. My hope was to use my creative project to help others who are also struggling with anorexia nervosa. The goal is to provide advice and encouragement based on my family's experiences as well as my sister's accounts of her time in a rehabilitation center. Some of the things that helped my sister through her recovery were patience, support and communication from family and loved ones, caring for animals, and practices with positive self- talk.
ContributorsWerner, Kaitlyn Nicole (Author) / Stevens, Carol (Thesis director) / Johnson, Melinda (Committee member) / Arizona State University. College of Nursing & Healthcare Innovation (Contributor) / Barrett, The Honors College (Contributor)
Created2016-12

Sanando Juntos: Digital Storytelling as a tool for Destigmatizing Depression in Latina Adolescents

Description

Latinas face among the highest documented rates of depressive symptoms among all adolescent groups. According to the Centers for Disease Control and Prevention's 2018 Youth Risk and Behavior Survey, 46.8% of Latina adolescents reported feeling sad and hopeless on a daily basis. As a Latina myself, I found myself wondering…

Latinas face among the highest documented rates of depressive symptoms among all adolescent groups. According to the Centers for Disease Control and Prevention's 2018 Youth Risk and Behavior Survey, 46.8% of Latina adolescents reported feeling sad and hopeless on a daily basis. As a Latina myself, I found myself wondering how we could direct power back to our Latina youth. I turned to the tradition of storytelling, an integral practice in Latino/a communities. Storytelling is a social and cultural tradition, which upholds intergenerational connection, understanding, and education. While many Latinas engage with storytelling in the family space, I wanted to foster a safe space outside of the household for Latinas to connect with one another. I was inspired by psychologist Dr. Lillian Comas-Diaz's concept "Spirita," a synthesizing spirituality among women of color which places emphasis on understanding the shared traumatic experiences and drawing joy from empathetic connections and commitment to creating community with one another. From here, I developed a website called "Sanando Juntos," or "Healing Together," teaching Latinas how to use storytelling as a tool to better understand themselves as well as create a space to foster connections with other Latinas. In order to develop a theoretical framework for the website, a literature review was conducted observing successful methods of digital storytelling in adolescent audiences. I then used this research to develop the main pillars for the website, a storytelling workshop, safe-space building, multimedia approaches, and peer-to-peer interaction. With many young Latina girls disproportionately suffering from suicidal ideation and depression, Sanando Juntos acts as a way to break down the stigma surrounding these difficult conversations while empowering and connecting like-minded Latinas. The final website can be viewed at https://sanandojuntos.com.
ContributorsDiaz, Chamile (Author) / Kuo, Karen (Thesis director) / Hita, Liza (Committee member) / Barrett, The Honors College (Contributor) / School of Art (Contributor) / School of Life Sciences (Contributor)
Created2023-05
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Linguistic Content of Stories Told by Caregivers of Hematopoietic Cell Transplant Recipients

Description
Hematopoietic cell transplantation (HCT) is a treatment for hematologic malignancies. The procedure poses multiple medical risks ranging from infection to graft-versus-host disease. Patients must designate a full-time informal caregiver, typically a family member. Caregivers assume multiple medical and logistical responsibilities. Distress and burden are common. Psychosocial interventions, including narrative-based interventions,…

Hematopoietic cell transplantation (HCT) is a treatment for hematologic malignancies. The procedure poses multiple medical risks ranging from infection to graft-versus-host disease. Patients must designate a full-time informal caregiver, typically a family member. Caregivers assume multiple medical and logistical responsibilities. Distress and burden are common. Psychosocial interventions, including narrative-based interventions, may offer support for caregivers. This thesis makes use of data collected as part of a digital storytelling intervention for HCT caregivers. Participants were 6 caregivers of HCT survivors who participated in a 3-day digital storytelling workshop, culminating in the creation of a personal story about their experience as a caregiver in the form of a video with narration in their own voice. Linguistic Inquiry and Word Count (LIWC, 2015) was used to characterize content of the stories. Compared to norms (base rates of word usage provided by the LIWC developers), caregivers used more first-person plural pronouns. Such use of we-talk may indicate caregiver-patient dyadic strength given other research linking we-talk to communal coping. Counter to prediction, caregivers did not differ from norms with respect to use of negative affect words or cognitive process words. They did, however, use more biological process words (to be expected given their focus on health) and more words indicative of affiliation (understandable in light of their interpersonal connection to the patient and supportive care role). Further research is needed to examine potential change in linguistic content across the HCT trajectory (from pre-transplant through long-term survivorship), also to compare caregiver and patient stories.
ContributorsPark, Jiwon Daniel (Author) / Langer, Shelby (Thesis director) / Kim, Sunny (Committee member) / Edson College of Nursing and Health Innovation (Contributor) / Barrett, The Honors College (Contributor)
Created2020-05