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- All Subjects: Digital Storytelling
- Creators: Kim, Sunny
Description
At least 30 million people in the United States suffer from an eating disorder during their lifetime (National Association of Anorexia Nervosa and Associated Disorders, 2016). The Centers for Disease Control and Prevention (CDC) defines anorexia nervosa as a disorder where the person strives to maintain a lower than normal body weight through restriction and starvation (CDC MMWR, 1996). People with this disorder constantly have to control and count everything they eat (Mayo Clinic, 2016). For my creative project, I documented my sister's struggles through Digital Storytelling. My hope was to use my creative project to help others who are also struggling with anorexia nervosa. The goal is to provide advice and encouragement based on my family's experiences as well as my sister's accounts of her time in a rehabilitation center. Some of the things that helped my sister through her recovery were patience, support and communication from family and loved ones, caring for animals, and practices with positive self- talk.
ContributorsWerner, Kaitlyn Nicole (Author) / Stevens, Carol (Thesis director) / Johnson, Melinda (Committee member) / Arizona State University. College of Nursing & Healthcare Innovation (Contributor) / Barrett, The Honors College (Contributor)
Created2016-12
Description
Hematopoietic cell transplantation (HCT) is a treatment for hematologic malignancies. The procedure poses multiple medical risks ranging from infection to graft-versus-host disease. Patients must designate a full-time informal caregiver, typically a family member. Caregivers assume multiple medical and logistical responsibilities. Distress and burden are common. Psychosocial interventions, including narrative-based interventions, may offer support for caregivers. This thesis makes use of data collected as part of a digital storytelling intervention for HCT caregivers. Participants were 6 caregivers of HCT survivors who participated in a 3-day digital storytelling workshop, culminating in the creation of a personal story about their experience as a caregiver in the form of a video with narration in their own voice. Linguistic Inquiry and Word Count (LIWC, 2015) was used to characterize content of the stories. Compared to norms (base rates of word usage provided by the LIWC developers), caregivers used more first-person plural pronouns. Such use of we-talk may indicate caregiver-patient dyadic strength given other research linking we-talk to communal coping. Counter to prediction, caregivers did not differ from norms with respect to use of negative affect words or cognitive process words. They did, however, use more biological process words (to be expected given their focus on health) and more words indicative of affiliation (understandable in light of their interpersonal connection to the patient and supportive care role). Further research is needed to examine potential change in linguistic content across the HCT trajectory (from pre-transplant through long-term survivorship), also to compare caregiver and patient stories.
ContributorsPark, Jiwon Daniel (Author) / Langer, Shelby (Thesis director) / Kim, Sunny (Committee member) / Edson College of Nursing and Health Innovation (Contributor) / Barrett, The Honors College (Contributor)
Created2020-05