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- All Subjects: bioethics
- All Subjects: Forests and forestry--Environmental aspects--California.
- Creators: Hurlbut, James
Description
While there is extensive information available about organizations that receive donated organs for transplant, much less is known about those that accept tissue and whole bodies for medical education and research. Throughout the United States, nontransplant anatomical donation organizations exist within an ambiguous sector of the donation industry, unencumbered by federal regulations. Although these companies adhere to the Uniform Anatomical Gift Act, the lack of a single entity responsible for overseeing their operations has led to public skepticism and animosity among competing businesses. Legislation has the potential to legitimize the industry. For it to be successful, however, the intricacies of a complex market that deals directly with the movement of human remains and intangible issues of human integrity and morality, must be thoroughly understood.
ContributorsGlynn, Emily Sanders (Author) / Brian, Jennifer (Thesis director) / Fisher, Rebecca (Committee member) / Barrett, The Honors College (Contributor) / School of Nutrition and Health Promotion (Contributor) / Department of English (Contributor)
Created2015-05
Description
American Indian literature is replete with language that refers to broken or hollow promises the US government has made to American Indians, one of the most prominent being that the US government has not kept its promises regarding health services for American Indians/Alaska Natives (AI/AN). Some commenters refer to treaties between tribes and the US government as the origin of the promise for health services to AI/AN. Others point to the trust relationship between the sovereign nations of American Indian tribes and the US government, while still others assert that the Snyder Act of 1921 or the Indian Health Care Improvement Act (IHCIA) contained the promise for health care. While the US has provided some form of health care for AI/AN since the country was in its infancy, and continues to do so through the Indian Health Service, the promise of health services for AI/AN is not explicit.
Philosophers have articulated that a promise contains a moral obligation to fulfill it because of others’ expectations created by that promise. As the US government made its first promises in early treaties with AI/AN tribes and subsequently made promises in the years since, it is morally obligated to fulfill those promises, be they lying promises or not, because of resulting expectations. Yet, the US government has historically acted to restrict the rights of AI/AN—rights that include access to health services—through assimilation, separation, or termination policies. Further, the policies of the US government have kept the AI/AN populations socioeconomically impoverished, dependent on the US government for basic needs, and susceptible to health-compromising conditions.
Using case studies, this dissertation looks not only at the policies and events that directly affected health services and health status, but also at how those policies and events contributed to health outcomes and the expectations of AI/AN. Given the history of the US government in fulfilling (or not fulfilling) its promises, this dissertation examines the expectations of AI/AN for their own future health outcomes under the policy of self-governance.
Philosophers have articulated that a promise contains a moral obligation to fulfill it because of others’ expectations created by that promise. As the US government made its first promises in early treaties with AI/AN tribes and subsequently made promises in the years since, it is morally obligated to fulfill those promises, be they lying promises or not, because of resulting expectations. Yet, the US government has historically acted to restrict the rights of AI/AN—rights that include access to health services—through assimilation, separation, or termination policies. Further, the policies of the US government have kept the AI/AN populations socioeconomically impoverished, dependent on the US government for basic needs, and susceptible to health-compromising conditions.
Using case studies, this dissertation looks not only at the policies and events that directly affected health services and health status, but also at how those policies and events contributed to health outcomes and the expectations of AI/AN. Given the history of the US government in fulfilling (or not fulfilling) its promises, this dissertation examines the expectations of AI/AN for their own future health outcomes under the policy of self-governance.
ContributorsDrago, Mary (Author) / Maienschein, Jane (Thesis advisor) / Ellison, Karin (Committee member) / Herkert, Joseph (Committee member) / Hurlbut, James (Committee member) / Robert, Jason (Committee member) / Trujillo, Michael (Committee member) / Arizona State University (Publisher)
Created2016
Description
In 2004, the South Korean geneticist Woo-Suk Hwang published what was widely regarded as the most important research result in biotechnology of the year. In the prestigious American journal Science, he claimed that he had succeeded in cloning a human blastocyst, an embryo in its early stages (Hwang et al. 2004). A year later, in a second Science article, he made the earth-shattering announcement that he had derived eleven embryonic stem cell lines using his cloning technique (Hwang et al. 2005). The international scientific community was stunned. American scientists publicly fretted that President George W. Bush‘s 2001 executive order limiting federal funding for stem-cell research in the United States had put American bioscience behind the Koreans‘ (Paarlberg 2005). These breakthroughs offered potential solutions to immune system rejection of transplanted organs and possible cures for diseases such as rheumatoid arthritis, Parkinson‘s, Down‘s syndrome, and paralysis (Svenaeus 2007). However, within a year, Hwang was exposed as a fraud who had faked his results and pressured his female colleagues to donate eggs without informed consent. Despite protests against his methods from Korean religious and nongovernmental organizations, Hwang had used his prestige to ignore his ethical obligations. The Korean government, too, was slow to investigate Hwang and to subject his work to appropriate regulation.
ContributorsClay, Anne (Author) / Hurlbut, James (Thesis director) / Maienschein, Jane (Committee member) / Marchant, Gary (Committee member) / Barrett, The Honors College (Contributor) / School of Life Sciences (Contributor)
Created2012-12
Description
Writing speculative fiction is a valuable method for exploring the potential societal transformations elicited by advances in science and technology. The aim of this project is to use speculative fiction to explore the potential consequences of precision medicine for individuals’ daily lives. Precision medicine is a vision of the future in which medicine is about predicting, and ultimately preventing disease before symptoms arise. The idea is that identification of all the factors that influence health and contribute to disease development will translate to better and less expensive healthcare and empower individuals to take responsibility for maintaining their own health and wellness. That future, as envisioned by the leaders of the Human Genome Project, the Institute for Systems Biology, and the Obama administration’s Precision Medicine Initiative, is assumed to be a shared future, one that everyone desires and that is self-evidently “better” than the present. The aim of writing speculative fiction about a “precision medicine” future is to challenge that assumption, to make clear the values underpinning that vision of precision medicine, and to leave open the question of what other possible futures could be imagined instead.
ContributorsVenkatraman, Richa (Author) / Brian, Jennifer (Thesis advisor) / Maienschein, Jane (Thesis advisor) / Hurlbut, James (Committee member) / Arizona State University (Publisher)
Created2022
Description
This dissertation explores the intersection of two major developments in global
environmental governance: the vision for a Green Economy and the growing influence of non-state actors. The work draws on multi-sited thick description to analyze how relationships between the state, market, and civil society are being reoriented towards global problems. Its focus is a non-binding agreement between California and Chiapas to create a market in carbon offsets credits for Reducing Emissions for Deforestation and forest Degradation (REDD). The study draws on three bodies of scholarship. From the institutionalist study of global environmental politics, it uses the ideas of orchestration, civil regulation, and private entrepreneurial authority to identity emerging alignments of state and non-state actors, premised on an exchange of public authority and private expertise. From concepts borrowed from science and technology studies, it inquires into the production, certification, and contestation of knowledge. From a constitutionalist perspective, it analyzes how new forms of public law and private expertise are reshaping foundational categories such as territory, authority, and rights. The analysis begins with general research questions applied to California and Chiapas, and the international space where groups influential in these sites are also active: 1) Where are new political and legal institutions emerging, and how are they structured? 2) What role does scientific, legal, and administrative expertise play in shaping these institutions, and vice versa? And 3) How are constitutional elements of the political order being reoriented towards these new spaces and away from the exclusive domain of the nation-state? The dissertation offers a number of propositions for combining institutionalist and constructivist approaches for the study of complex global governing arrangements. It argues that this can help identify constitutional reconfigurations that are not readily apparent using either approach alone.
environmental governance: the vision for a Green Economy and the growing influence of non-state actors. The work draws on multi-sited thick description to analyze how relationships between the state, market, and civil society are being reoriented towards global problems. Its focus is a non-binding agreement between California and Chiapas to create a market in carbon offsets credits for Reducing Emissions for Deforestation and forest Degradation (REDD). The study draws on three bodies of scholarship. From the institutionalist study of global environmental politics, it uses the ideas of orchestration, civil regulation, and private entrepreneurial authority to identity emerging alignments of state and non-state actors, premised on an exchange of public authority and private expertise. From concepts borrowed from science and technology studies, it inquires into the production, certification, and contestation of knowledge. From a constitutionalist perspective, it analyzes how new forms of public law and private expertise are reshaping foundational categories such as territory, authority, and rights. The analysis begins with general research questions applied to California and Chiapas, and the international space where groups influential in these sites are also active: 1) Where are new political and legal institutions emerging, and how are they structured? 2) What role does scientific, legal, and administrative expertise play in shaping these institutions, and vice versa? And 3) How are constitutional elements of the political order being reoriented towards these new spaces and away from the exclusive domain of the nation-state? The dissertation offers a number of propositions for combining institutionalist and constructivist approaches for the study of complex global governing arrangements. It argues that this can help identify constitutional reconfigurations that are not readily apparent using either approach alone.
ContributorsMonfreda, Chad (Author) / Miller, Clark (Thesis advisor) / Hurlbut, James (Committee member) / Abbott, Kenneth (Committee member) / Arizona State University (Publisher)
Created2015