Matching Items (35)
Description
Autism Spectrum Disorder (ASD) holds potential for significantly impacting the primary caregiver and family, as well as the child with ASD. In particular, sleep problems occur frequently among children with ASD, and their poor sleep may negatively affect that of their caregivers. Health-related quality of life (HRQoL) and Family Quality of Life (FQoL) are salient indices of caregiver and family well-being. This pilot study explored associations between family caregiver sleep problems and caregiver sense of coherence (SOC) or coping on HRQoL and FQoL. Additionally, this study examined relationships between child sleep and behavior problems on caregiver sleep and well-being.
Sixty-two family caregivers of children with ASD (M =7.61, range: 6-11 years old) participated in this survey study. Participants provided demographic information and completed measures of HRQoL, FQoL, caregiver sleep, SOC, parental stress, child sleep, and child behavior.
Caregivers with longer sleep duration reported better mental health and better FQol. Caregivers who reported insomnia symptoms, non-restorative sleep, and insufficient sleep were more likely to report poorer mental health than caregivers who did not report these sleep disorder symptoms. A stronger caregiver SOC was associated with lower caregiver stress, better mental health, and better FQoL. Significant relationships were found between shorter caregiver sleep duration or sleep disorder symptoms (i.e., difficulty staying asleep, early morning awakening, insufficient sleep) and greater child sleep problems. Moreover, short sleep duration or insufficient sleep among caregivers was significantly associated with greater parenting stress. Notably, biological parents with Restless Legs Syndrome (RLS) had children with more restless sleep and higher rates of some behavior problems.
There are a number of potential connections between sleep problems of children with ASD and sleep problems of their caregivers that are likely rooted in genetic, environmental, socio-economic, and behavioral factors. Interventions for sleep problems must address the context of the family and consider that sleep problems may be common to the caregiver and the child. The results of this study support findings from many prior studies and point to salient variables for future research and interventions to promote healthy caregiver sleep.
Sixty-two family caregivers of children with ASD (M =7.61, range: 6-11 years old) participated in this survey study. Participants provided demographic information and completed measures of HRQoL, FQoL, caregiver sleep, SOC, parental stress, child sleep, and child behavior.
Caregivers with longer sleep duration reported better mental health and better FQol. Caregivers who reported insomnia symptoms, non-restorative sleep, and insufficient sleep were more likely to report poorer mental health than caregivers who did not report these sleep disorder symptoms. A stronger caregiver SOC was associated with lower caregiver stress, better mental health, and better FQoL. Significant relationships were found between shorter caregiver sleep duration or sleep disorder symptoms (i.e., difficulty staying asleep, early morning awakening, insufficient sleep) and greater child sleep problems. Moreover, short sleep duration or insufficient sleep among caregivers was significantly associated with greater parenting stress. Notably, biological parents with Restless Legs Syndrome (RLS) had children with more restless sleep and higher rates of some behavior problems.
There are a number of potential connections between sleep problems of children with ASD and sleep problems of their caregivers that are likely rooted in genetic, environmental, socio-economic, and behavioral factors. Interventions for sleep problems must address the context of the family and consider that sleep problems may be common to the caregiver and the child. The results of this study support findings from many prior studies and point to salient variables for future research and interventions to promote healthy caregiver sleep.
ContributorsRussell, Maureen (Author) / Baldwin, Carol (Thesis advisor) / Quan, Stuart F (Committee member) / McClain, Darya (Committee member) / Smith, Christopher (Committee member) / Matthews, Nicole (Committee member) / Arizona State University (Publisher)
Created2014
Description
Health-related quality of life (HR-QOL) is a significant treatment outcome for persons with end-stage renal disease (ESRD); however, little is known about the HR-QOL of Mexican patients with ESRD. This pilot study describes relationships between demographics, sleep disorders, spirituality, mood, folk practices and dialysis modality on the HR-QOL of patients with ESRD residing in Guanajuato, Mexico. Mexican patients receiving continuous ambulatory peritoneal dialysis (CAPD), automated peritoneal dialysis (APD) and hemodialysis (HD) provided information on demographics, clinical health data including body mass index (BMI), and folk health practices. Measures included the Short Form (SF)-36 HR-QOL survey, Sleep Habits Questionnaire, Latin Spirituality Perspective Scale and Hospital Anxiety and Depression Scale. Data were analyzed using SAS software (V9.1). Signifi¬cance level for this pilot study was set at p<0.10. The Quality-Adjusted Life Year method was utilized to examine cost effectiveness for each dialysis modality. Demographics and clinical data showed participants (N=121) to be 59 (SD=13) years, predominantly men (55.4%), married (66.9%), Catholic (92.6%), and not currently working (78.3%). The majority were diabetic (72%) and slightly overweight (BMI M=26.1; SD=5.1). The CAPD group (n=39) demonstrated significantly lower HR-QOL scores compared to the APD (n=42) and HD (n=40) groups. Patients on HD reported higher rates and greater numbers of sleep disorders, including insomnia symptoms, non-restorative and insufficient sleep, and daytime somnolence compared to patients on CAPD and APD. Patients on CAPD reported more anxiety and depression compared to patients on HD and APD. Overall linear regression for HR-QOL found dialysis type, sleep disorders and income to be significant predictors and the model accounted for 31% of the variance. Cost analysis indicated APD as the preferred treatment because it is less costly and results in the best HR-QOL compared to the other treatment modalities. Findings provide the first SF-36 norms for Mexicans with ESRD. Sleep disorders and dialysis type greatly impinge on the HR-QOL of these patients, particularly their mental health. APD was identified as the preferred treatment based on low cost and improved HR-QOL. Results can inform clinical care and health policy for Mexican patients with ESRD.
ContributorsReynaga-Ornelas, Luxana (Author) / Baldwin, Carol M. (Thesis advisor) / Quan, Stuart F (Committee member) / Arcoleo, Kimberly (Committee member) / Arizona State University (Publisher)
Created2011
Description
ABSTRACT The massive number of baby boomers approaching retirement age has been termed the `gray tsunami.' As America's gray tsunami approaches, healthcare workers and social workers will become overwhelmed with requests for services and supports (St. Luke's Health Initiative, 2001; Bekemeier, 2009). This impact can be ameliorated by assisting aging individuals in maintaining or in some cases regaining independence. Individuals who live in assisted living facilities (AFLs) come from diverse backgrounds. Many of these individuals have lived in paternalistic environments such as prisons and mental health institutions. As a consequence of these disempowering conditions, residents of ALFs may experience increased depression, decreased self-esteem, and decreased locus of control (R. Hess, personal communication, September 30, 2010). These disabling conditions can severely limit residents' choice-making opportunities and control over their own lives. If programs can be created to provide empowering experiences and to teach self-advocacy skills, I hypothesize that residents will report an improved quality of life and display fewer depressive symptoms, increased self-esteem, and increased locus of control. Helping these individuals to maintain or regain independence will not only reduce the workload for care workers, it will enhance the lives of residents. The only hypothesis that was supported by the study was an improvement in residents' quality of life, and that hypothesis was only partially supported. Two of the five domains in the Residents' Quality of life questionnaire indicated an increase in quality of life. ii The Activities subscale of the Ferrans & Powers Quality also indicated that there was an increase in quality of life.
ContributorsHedgpeth, Jay (Author) / Napoli, Maria (Thesis advisor) / Gerdes, Karen (Committee member) / Bonifas, Robin (Committee member) / Arizona State University (Publisher)
Created2012
Description
Female college veterans face a host of struggles both personally and academically. Research that focuses primarily on female veterans’ wellness needs as they transition into civilian life is limited and this population is woefully understudied in comparison to male veterans. The purpose of this study was to describe and explore some of the wellness needs of female college veterans making the transition from military service to college/civilian life. Twelve hundred and thirty female veterans from a University Veterans Center were sent a recruitment email where 125 successfully completed a life satisfaction (Frisch, 1994), physical activity (Craig et al., 2003), resilience (Connor & Davidson, 2003), and a five-facet mindfulness (Baer et al., 2008) questionnaire. The means for this population were: Quality of life (M= 37.8), Resilience (M= 70.5), Physical Activity MET minutes (M= 4,605), and Five-facet mindfulness (M= Observing 3.50, Describing = 3.38, Acting with Awareness M= 3.02, Non-Judging of Inner Experience M= 2.98, Non-reactivity to Inner Experience M= 3.06). Resilience was significantly (p <0.01) and positively correlated to all five domains of mindfulness (range r = 0.332 – 0.534) and was negatively associated with Quality of Life (QOL) (r= -0.204). Vigorous Activity minutes and Total Met Minutes were both positively associated with QOL (r= 0.300 and r= 0.199 respectively). This population of female veterans self-reported to have very low/low life satisfaction, low resilience, and high physical activity levels. The behaviors and traits reported in these female college veterans provide important information for developing resources and potential interventions in the future.
ContributorsYu, Gladys Marie Tiu Lim (Author) / Swan, Pamela (Thesis advisor) / Sebren, Ann (Committee member) / Davis-Strong, Devi (Committee member) / Arizona State University (Publisher)
Created2019
Description
This literature review investigates the idea of what makes a person’s life ‘enviable’ by defining the term and then by exploring the question of whether or not young adults with intellectual and developmental disabilities in the United States can achieve an enviable life as defined. This literature review synthesizes current and historic research through an analysis of various studies on outcomes for individuals with intellectual and developmental disabilities (IDD), their families, and the resources offered within community platforms to help create such a life for young adults with IDD. This review also aims to help change society’s views on young adults with intellectual and developmental disabilities and challenges the community to address this issue further in order to create a more accessible, enviable, and inclusive lifestyle for individuals with intellectual and developmental disabilities.
ContributorsBramanti, Allison Marie (Author) / Gehrke, Rebecca (Thesis director) / Barnett, Juliet (Committee member) / Division of Teacher Preparation (Contributor) / Barrett, The Honors College (Contributor)
Created2016-12
Description
Cochlear implants are electronic medical devices that create hearing capabilities in those with inner ear damage that results in total or partial hearing loss. The decision to get a cochlear implant can be difficult and controversial. Cochlear implants have many physical and social impacts on cochlear implant users. The aim of this study was to evaluate how patient narratives written by people with cochlear implants (or their caregivers) express issues of quality of life and personhood related to the use of this medical device. The methodology used to answer this question was a content analysis of patient narratives. The content analysis was done using grounded theory and the constant comparative method. Two sensitizing concepts, quality of life and personhood, were used and became the large umbrella themes found in the narratives. Under the major theme of quality of life, the sub-themes that emerged were improved hearing, improved communication skills, and assimilation into the hearing world. Under the major theme of personhood, the sub-themes that emerged were confidence, self-image, and technology and the body. Another major theme, importance of education, also emerged. In general, cochlear implant users and their caregivers expressed in their narratives that cochlear implants have positive effects on the quality of life of cochlear implant users. This is because almost all of the narrative writers reported improved hearing, improved communication skills, and better assimilation into the hearing world. In addition, it was found that cochlear implants do not have a significant affect on the actual personal identity of cochlear implant users, though they do make them more confident. The majority of cochlear implant users expressed that they view the cochlear implant device as an assistive tool they use as opposed to a part of themselves. Lastly, there is a need for more awareness of or access to education and therapy for cochlear implant users.
ContributorsResnick, Jessica Helen (Author) / Helms Tillery, Stephen (Thesis director) / Robert, Jason (Committee member) / Piemonte, Nicole (Committee member) / School of International Letters and Cultures (Contributor) / School of Life Sciences (Contributor) / Barrett, The Honors College (Contributor)
Created2016-05
Description
Atrial fibrillation, also known as Afib or AF, is the most common irregular heart rhythm among the United States adult population. Atrial fibrillation is characterized by an abnormal fibrillation of the upper chambers of the heart, known as the atria. When left chronically untreated, this condition may lead to insufficient systemic blood flow or the formation of blood clots. Atrial fibrillation has many modifiable risk factors, meaning contributing habits and practices within the patient's control that may worsen the condition. Communication of these modifiable risk factors to patients with atrial fibrillation is important in improving patient quality of life and for reduction of disease symptoms. The motivation for this study was to convey the potential of improved disease process by lifestyle modification to patients with atrial fibrillation.
ContributorsLehman, Jessica Lynn (Author) / Ross, Heather (Thesis director) / Kelly, Lesly (Committee member) / Arizona State University. College of Nursing & Healthcare Innovation (Contributor) / Barrett, The Honors College (Contributor)
Created2017-12
Description
Individuals are attracted to occupational environments that align with their interests and personality characteristics (Holland, 1985, 1997). When an individual's attributes (i.e., needs, abilities, values and/or interests) align with the occupational environment's characteristics an individual is more satisfied. Past research suggests this relation is modest at best, hovering between .20 and .30 (Meyer et al., 2001, c.f. Wilkins & Tracey, 2014), with slightly higher estimates (ranging from .24 to .35) depending on how the variables of person and environment were measured (Kristof-Brown, Zimmerman, & Johnson, 2005). Several factors contribute to such low estimates, most notably the role of moderator variables in suppressing or exacerbating the true magnitude of this relation. A moderator that has yet to be explored is that of nonwork role priority, or the degree to which an individual's work identity is valued relative to other role identities. In the current study, three hypotheses were posited to investigate nonwork role priorities as a potential moderator to the congruence-satisfaction relation. Latent class analysis was used to apply a person-centered approach to understanding response patterns and differences in these roles. The sample was differentiated best by a two-class solution and the class variable in all three hierarchical regression models explained about five percent of the variance in job satisfaction, which suggests that work and nonwork role priority are meaningful to understanding individual career happiness. Class was not identified as a significant moderator to the congruence-satisfaction relation. Discussion of limitations to the current study and recommendations for future work in this area are presented.
ContributorsKube, Erin (Author) / Tracey, Terence J. (Thesis advisor) / Green, Samuel (Committee member) / Thompson, Marilyn (Committee member) / Arizona State University (Publisher)
Created2016
Description
Having a child with special needs can be overwhelming, emotionally draining and extremely stressful for parents and their family members. Research identifies the support systems families need in order to have quality-of-life. The current study uses mixed methods to evaluate the degree to which parents and other primary caregivers in Arizona view the educational and health related services that their child with special needs and/or other health impairments received when they entered kindergarten. It evaluated the degree to which the caregivers themselves perceived the support/services that they received in order to access quality of life for themselves, their child with special needs and other family members. Finally, the research identified reoccurring themes to better understand the intricacies involved within these support systems/services that promoted or hindered positive family and child outcomes.
ContributorsOkraski, Ronni Jeanne (Author) / Swadener, Elizabeth (Thesis advisor) / Mathur, Sarup (Committee member) / DiGangi, Samuel (Committee member) / Perry, Nancy (Committee member) / Arizona State University (Publisher)
Created2017
Description
This study examined poverty, material hardship, financial capability, and quality of life among residents of a subsidized housing complex for seniors and adults with disabilities in Phoenix, Arizona. Respondents (N-25) completed a 42-item questionnaire in March of 2017. Data analysis revealed reports of incomes as low as 200% of the poverty level, difficulty paying for food, medications, recreation, and transportation. The study found a positive correlation between the presence of a disability and obtaining sufficient food. In addition, the results indicated lowered financial literacy, reduced ability to keep up with monthly expenses, and a positive correlation between lower income and inability to come up with $2000 in the event of an unexpected expense. Respondents reported minimal use of non-mainstream financial services; most had checking accounts, while fewer reported savings accounts. Scores on financial literacy questions were low and respondents indicated interest in a financial literacy course. The study also revealed low perceived quality of life among the majority of respondents and a positive relationship with material hardship and lower quality of life scores. Implications include the need for further research within the population.
ContributorsReily, Tama Dawn (Author) / Shafer, Michael (Thesis advisor) / Ferguson-Colvin, Kristin (Committee member) / Kruck, Amina Donna (Committee member) / Arizona State University (Publisher)
Created2017