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In Arizona, there are virtually no established support groups or services for children on the autism spectrum and their families when experiencing the loss of a loved one. This is due to many factors, including the complexity of autism, an inconsistent belief that children with autism are capable of grieving,

In Arizona, there are virtually no established support groups or services for children on the autism spectrum and their families when experiencing the loss of a loved one. This is due to many factors, including the complexity of autism, an inconsistent belief that children with autism are capable of grieving, and a general lack of research conducted on the crossover of children with autism and grief. This proposal is based on the social work strengths perspective, in which I argue that children living with autism are capable of grieving and need support to do so. The way families and practitioners approach grief among children with autism is with individual counseling based on a therapist's discretion, grief books and guides, and virtual communities. I attempt to compile evidence-based and practical activities, interviews with parents and professionals, and my experience in order to recommend effective support for children with autism experiencing loss. My hope is that caregivers will use this material in order to understand and help a neglected population find the language and means to safely grieve.
ContributorsCohen, Jessica Marie (Author) / Ingram-Waters, Mary (Thesis director) / Stuckey, Michelle (Committee member) / School of Criminology and Criminal Justice (Contributor) / School of Social Work (Contributor) / Barrett, The Honors College (Contributor)
Created2016-05
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Academic success in childhood is crucial for later academic, occupational, and life success (Heckman, 2006; Kuncel, Hezlett, & Ones, 2004; Spengler, Brunner, Damian, Lüdtke, Martin, & Roberts, 2015). Recent research suggests sleep is important for academic success but lacks objective measures of sleep (Buckhalt, El-Sheikh, Keller, & Kelly, 2009; Curcio,

Academic success in childhood is crucial for later academic, occupational, and life success (Heckman, 2006; Kuncel, Hezlett, & Ones, 2004; Spengler, Brunner, Damian, Lüdtke, Martin, & Roberts, 2015). Recent research suggests sleep is important for academic success but lacks objective measures of sleep (Buckhalt, El-Sheikh, Keller, & Kelly, 2009; Curcio, Ferrara, & De Gennaro, 2006; Dewald, Meijer, Oort, Kerkhof, & Bögels, 2010; Philbrook, Hinnant, Elmore-Staton, Buckhalt, & El-Sheikh, 2017). The purpose of this study was to examine the relations between sleep and academic success among children through objective measures of sleep in order to expand on the literature. Our sample consisted of 381 twins (50.4% male; 56% Caucasian; 36.5% same sex dizygotic) participating in an 8-year assessment from a longitudinal twin study. Actigraphy was used to assess sleep while various measures were used to assess academic success. A series of mixed model regressions were used to test the main predictions, with family entered as a random effect. Sex, age, Hispanic, SES, and zygosity were controlled for. Significant negative relations were revealed between sleep latency and reading and sleep latency and school liking. Additionally, SES was the most consistent significant positive predictor of our measures of academic success. These results suggest sleep and effects of SES should be considered when developing ways to help children’s school performance.
ContributorsAlvarez, Rachel Marie (Author) / Valiente, Carlos (Thesis director) / Doane, Leah (Committee member) / School of Criminology and Criminal Justice (Contributor) / Department of Psychology (Contributor) / Barrett, The Honors College (Contributor)
Created2018-05
Description
Most research on domestic violence has been regularly generalized, on the issue and the people involved, who are most commonly but not necessarily, only women. Previous studies have focused mainly on women in the United States facing a domestic violence situation and the criminal justice response to them, however studies

Most research on domestic violence has been regularly generalized, on the issue and the people involved, who are most commonly but not necessarily, only women. Previous studies have focused mainly on women in the United States facing a domestic violence situation and the criminal justice response to them, however studies on the immigrant populations are limited. In this qualitative research we attempt to answer the question of how do domestic violence circumstances during childhood and young formative years, 12 - 18 years old, affect people from diverse cultures, as they become adults in the U.S. This study looks at the perceptions of women from Cambodia, Mexico, Russia and Vietnam as well as the United States, involving Native American women and their dependent children who have emigrated to or lived in the U.S. and experienced violence from their intimate partner and their experiences with the law, culture, Child Protective Services and other programs. Through previous interviews with women of these cultures we gain an understanding of their struggles and thoughts about their experiences and understandings and look into what changes can be implemented in order to help the various cultured victims of domestic violence in the law, community and criminal justice system and programs.
ContributorsBenado Smasch, Alisys Antanaychene (Author) / DeCarolis, Claudine (Thesis director) / Fox, Kate (Committee member) / School of Criminology and Criminal Justice (Contributor) / Barrett, The Honors College (Contributor)
Created2016-05
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Description
This research study looked at frequency and proportion of suggestive questions (negative term, statement, and tag), the age of the child, and the attorney conducting the examination (prosecution versus defense). The population of this study was obtained from Maricopa County Attorney's Office court transcripts from 2005-2015 and the sample included

This research study looked at frequency and proportion of suggestive questions (negative term, statement, and tag), the age of the child, and the attorney conducting the examination (prosecution versus defense). The population of this study was obtained from Maricopa County Attorney's Office court transcripts from 2005-2015 and the sample included 64 minors between the ages of 5-12 years old. The present study showed that regarding frequency, there was no significant difference between the number of suggestive questions asked by the prosecution and defense, however, when looked at the proportion of these questions, prosecution asked significantly fewer suggestive questions compared to the defense. Older children (9-12 year olds) receive more, both in terms of frequency and proportion, suggestive questions than younger children (5-8 year olds). Lastly, children typically gave elaborate responses to suggestive questions from the defense more than from the prosecution. This study shows that attorneys are using problematic methods when questioning children between the ages of 5-12 years old and these suggestive methods may affect the child's ability to provide credible testimony.
ContributorsMcDonald, Ashley (Author) / Stolzenberg, Stacia (Thesis director) / Fradella, Hank (Committee member) / Barrett, The Honors College (Contributor) / School of Criminology and Criminal Justice (Contributor)
Created2018-12
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Description

It is well known that the lack of care coordination in the healthcare system causes numerous problems including cost inefficiency and inconsistent care, specifically for complex pediatric and adult patients. Many pediatric patients have complex medical and social service needs which can be expensive for both the patient’s parents and

It is well known that the lack of care coordination in the healthcare system causes numerous problems including cost inefficiency and inconsistent care, specifically for complex pediatric and adult patients. Many pediatric patients have complex medical and social service needs which can be expensive for both the patient’s parents and the general healthcare system. Therefore, it is difficult for the healthcare system to deliver the highest quality care possible, due to the number of appointments that have to be scheduled (with some being out of state), the large volume of physical health records, and overall lack of time parents have to coordinate this care while also caring for themselves and other family members. It is integral to find a more efficient way to coordinate care for these patients, in order to improve overall care, cost efficiency, and outcomes. <br/>A number of stakeholders in Arizona came together to work on this problem over several years. They were funded through a PCORI Eugene Washington Engagement grant to investigators at ASU. This project, Take Action for Arizona's Children through Care Coordination: A Bridge to Action was developed in order to further develop a research agenda and build the network (PCOR). Regional conferences were conducted in Flagstaff, Yuma, Phoenix, and Tucson, as well as a final capstone conference held in Phoenix. At these conferences, frustrations, suggestions, and opinions regarding Children with Special Health Care Needs (CSHCN) and navigating the healthcare system were shared and testimonials were transcribed.<br/>This study focused on the capstone conference. The study design was a strategic design workshop; results of the design analysis were analyzed qualitatively using descriptive content analysis. Themes described parent’s common experiences navigating the system, impacts resulting from such experiences, and desires for the care coordination system. Quotes were then grouped into major themes and subthemes for the capstone conference. After these themes were determined, the overarching goals of stakeholders could be assessed, and implementation projects could be described.

ContributorsBrennan, Bayley (Author) / Doebbeling, Bradley (Thesis director) / Lamb, Gerri (Committee member) / College of Health Solutions (Contributor, Contributor) / School of Life Sciences (Contributor) / Barrett, The Honors College (Contributor)
Created2021-05
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Description

Children with congenital heart disease (CHD) are at increased risk for psychosocial issues (PSI), decreased quality of life (QOL), and decreased resilience. The purpose of this project was to implement a screening protocol for PSI, QOL, and resilience, with appropriate psychosocial referral for children with CHD.

A pilot protocol was implemented

Children with congenital heart disease (CHD) are at increased risk for psychosocial issues (PSI), decreased quality of life (QOL), and decreased resilience. The purpose of this project was to implement a screening protocol for PSI, QOL, and resilience, with appropriate psychosocial referral for children with CHD.

A pilot protocol was implemented to screen children with CHD, aged 8-17 years, and parents, for resilience, QOL, and PSI. Referrals for psychosocial services were made for 84.2% of children screened (n = 16) based on scoring outcomes. Statistically significant differences in the parents and children’s resilience mean scores were noted. Higher parental scores may indicate that parents believe their children are more resilient than the children perceive themselves to be.
Early identification of concerns regarding QOL, resilience, and PSI in children with CHD can provide ongoing surveillance, while affording opportunities for improved communication between providers, parents, and children. Routine screening and longitudinal follow-up is recommended.

ContributorsBonowski, Kelley (Author) / Jacobson, Diana (Thesis advisor) / Zangwill, Steven (Thesis advisor) / Espinoza, Jennifer (Thesis advisor)
Created2018-04-30
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Description

Diabetes mellitus (DM) is a detrimental disease that afflicts approximately 23.6 million Americans and costs $176 billion dollars annually in direct medical expenses (American Diabetes Association [ADA], 2015). Approximately 208,000 children and adolescents with diabetes are under the age of 20 years (ADA, 105; CDC, 2014). Currently, the standard of

Diabetes mellitus (DM) is a detrimental disease that afflicts approximately 23.6 million Americans and costs $176 billion dollars annually in direct medical expenses (American Diabetes Association [ADA], 2015). Approximately 208,000 children and adolescents with diabetes are under the age of 20 years (ADA, 105; CDC, 2014). Currently, the standard of medical practice in school-aged children and adolescents with type 1 diabetes is to administer insulin after the child or teen has eaten. The most current evidence has demonstrated a decrease hemoglobin A1C (HbA1c) and preference for pre-prandial insulin administration (Cobry et al., 2010; Danne et al., 2003; DePalma et al., 2011; Enander et al., 2012; Luijf et al., 2010; Scaramuzza et al., 2010).

This Doctor of Nursing Practice (DNP) project delivered an educational program for parents of school age children and adolescents with type 1 diabetes and instituted pre-prandial insulin administration as the standard of care in an outpatient pediatric endocrine clinic. Education was delivered in both verbal and written formats. Data collection included weekly blood glucose reports and HbA1c at initial and follow-up sessions. Descriptive statistics were utilized to analyze the data. No post intervention data was able to be collected due to participant drop out. Future directions to promote this practice change are discussed.

ContributorsBui, Ngoc Quyen T. (Author) / Jacobson, Diana (Thesis advisor)
Created2016-05-07
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Description

Introduction: More than 1.2 million children in military families face long separations from a parent due to deployment or extended assignment, which can lead to significant family dysfunction as well as behavioral, emotional, and scholastic problems for the child. The purpose of From Caring 2 Coping is to identify and

Introduction: More than 1.2 million children in military families face long separations from a parent due to deployment or extended assignment, which can lead to significant family dysfunction as well as behavioral, emotional, and scholastic problems for the child. The purpose of From Caring 2 Coping is to identify and provide healthcare providers of military children tools to recognize and address maladaptive and externalizing behaviors of these children, while also assisting the nondeployed parent or caregiver to provide their children with the necessary support to reduce stress and increase their own coping skills.

Materials and Methods: After approval from Arizona State University IRB, children aged 4-11 years who are currently or forecasted to be separated from a military parent due to a deployment or extended assignment, were recruited from a military pediatric clinic along with their primary caregiver. An intervention was adapted from Bowen and Martin’s (2011) Resiliency Model of Role Performance for Service Members, Veterans, and their Families to identify and improve individual assets and family communication skills, find support through social connections, and prepare for potential stressors by constructing a Roadmap of Life. The Parental Stress Scale (PSS) and Pediatric Symptom Checklist (PSC-17) were completed before and after the 4-week intervention along with a final caregiver survey to evaluate the caregiver’s perceptions of From Caring 2 Coping.

Results: Four mothers and eight children completed the program for which Wilcoxon matched-pairs signed-rank test compared results from pre- and post PSC-17 surveys from the children showing significant improvement post-intervention (p = 0.017). The post PSC-17 results were compared to post PSS results with Spearman Correlation Coefficient, r = 0.949, that is statistically significant (p = 0.05). From Caring 2 Coping is rated as an effective program by parents in a postintervention survey that is easy to incorporate into daily activities. Parents ranked highest satisfaction through use of the Family Communication Plan and Family Timeline.

Conclusions: From Caring 2 Coping intervention tools improved family communication, use of individual assets and Roadmap of Life coping skills, thereby improving child and caregiver coping response as evidenced by improved PSC-17 and PSS scores. Basing the intervention on the Resiliency Model of Role Performance which has proven successful in the military population, improves the chances for success in this target population. However, the small sample size of four families requires further study with more families at all levels of the deployment cycle in order to refine the intervention.

ContributorsLove, Christina F. (Author) / Jacobson, Diana (Thesis advisor) / LaBronte, Kimberly (Thesis advisor)
Created2018-04-30
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Description
Background/Purpose: The prevalence of overweight and obesity in the pediatric population is a global epidemic. Rapid weight gain in early childhood exacerbates risk factors for obesity, chronic disease in adulthood, and disqualifies 31% of American youth from serving in the Armed Forces. Although the pediatric dependents weight crisis reflects the

Background/Purpose: The prevalence of overweight and obesity in the pediatric population is a global epidemic. Rapid weight gain in early childhood exacerbates risk factors for obesity, chronic disease in adulthood, and disqualifies 31% of American youth from serving in the Armed Forces. Although the pediatric dependents weight crisis reflects the national dilemma, there are inconsistencies in provider knowledge, limited access to evidence-based, weight management intervention, and treatment options. This paper will assess provider needs, identify opportunity to improve practice, and process used in weight management in the clinic. Method: Eight military and four civilian pediatric and family practice providers completed a 16-item needs assessment survey. The survey was distributed via email using an online survey tool, and a printed version was provided to those who had not completed it online. Data was collected over 8 weeks and a descriptive analysis of content was done using the Intellectus software. Results: Although the response rate was 88.9%, it was lower than anticipated due to COVID-19 related military deployments. Descriptive data were obtained on a variety of provider needs and practices. Results provided valuable information on current attitudes of providers. Providers demonstrated a significant need for a multidisciplinary support team including a dietician and more time dedicated to weight management at office visits. At least 50% of providers have had motivational interviewing training and report that they apply these techniques as part of an intervention in patient’s weight management care. Implication: Data supports overweight and obesity care practice changes in the clinic. Areas identified by providers included the need for further training and clinic management support including the availability of a pediatric dietician added to the healthcare team.
Created2021-04-27
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Description
Sickle cell disease is a genetic hemoglobinopathy resulting in chronic and daily pain, risk of serious sequelae, and altered activities of daily living. Resources dedicated to helping individuals with sickle cell disease are lacking, especially compared to other chronic diseases. Children with sickle cell disease experience school absence, fractured peer

Sickle cell disease is a genetic hemoglobinopathy resulting in chronic and daily pain, risk of serious sequelae, and altered activities of daily living. Resources dedicated to helping individuals with sickle cell disease are lacking, especially compared to other chronic diseases. Children with sickle cell disease experience school absence, fractured peer relationships, frequent healthcare visits, stigma, and feelings of isolation. Additionally, chronic pain decreases developmentally important play and physical activity in these children. The purpose of this Doctor of Nursing Practice (DNP) project is to conduct a needs assessment to inform sickle cell disease family camp programming in southern Arizona. Once a camp experience can be safely implemented, the effects of a camp experience on knowledge, empowerment, and disease management in children with sickle cell disease will be investigated. Research specific to camps for children suffering from sickle cell disease is lacking, however ample evidence suggests the benefit of disease specific camps. Medical specialty camps provide an opportunity for children and families to normalize their condition, participate in activities, and form peer relationships in an environment that safely accommodates their unique needs. This has led to the initiation of an evidence-based project to develop a needs assessment for families affected by sickle cell disease and community partners to inform camp activity development guided by Bandura’s theory of self-efficacy and the Centers for Disease Control and Prevention (CDC) Framework for Program Evaluation.
Created2021-04-23