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In Arizona, there are virtually no established support groups or services for children on the autism spectrum and their families when experiencing the loss of a loved one. This is due to many factors, including the complexity of autism, an inconsistent belief that children with autism are capable of grieving,

In Arizona, there are virtually no established support groups or services for children on the autism spectrum and their families when experiencing the loss of a loved one. This is due to many factors, including the complexity of autism, an inconsistent belief that children with autism are capable of grieving, and a general lack of research conducted on the crossover of children with autism and grief. This proposal is based on the social work strengths perspective, in which I argue that children living with autism are capable of grieving and need support to do so. The way families and practitioners approach grief among children with autism is with individual counseling based on a therapist's discretion, grief books and guides, and virtual communities. I attempt to compile evidence-based and practical activities, interviews with parents and professionals, and my experience in order to recommend effective support for children with autism experiencing loss. My hope is that caregivers will use this material in order to understand and help a neglected population find the language and means to safely grieve.
ContributorsCohen, Jessica Marie (Author) / Ingram-Waters, Mary (Thesis director) / Stuckey, Michelle (Committee member) / School of Criminology and Criminal Justice (Contributor) / School of Social Work (Contributor) / Barrett, The Honors College (Contributor)
Created2016-05
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It is well known that the lack of care coordination in the healthcare system causes numerous problems including cost inefficiency and inconsistent care, specifically for complex pediatric and adult patients. Many pediatric patients have complex medical and social service needs which can be expensive for both the patient’s parents and

It is well known that the lack of care coordination in the healthcare system causes numerous problems including cost inefficiency and inconsistent care, specifically for complex pediatric and adult patients. Many pediatric patients have complex medical and social service needs which can be expensive for both the patient’s parents and the general healthcare system. Therefore, it is difficult for the healthcare system to deliver the highest quality care possible, due to the number of appointments that have to be scheduled (with some being out of state), the large volume of physical health records, and overall lack of time parents have to coordinate this care while also caring for themselves and other family members. It is integral to find a more efficient way to coordinate care for these patients, in order to improve overall care, cost efficiency, and outcomes. <br/>A number of stakeholders in Arizona came together to work on this problem over several years. They were funded through a PCORI Eugene Washington Engagement grant to investigators at ASU. This project, Take Action for Arizona's Children through Care Coordination: A Bridge to Action was developed in order to further develop a research agenda and build the network (PCOR). Regional conferences were conducted in Flagstaff, Yuma, Phoenix, and Tucson, as well as a final capstone conference held in Phoenix. At these conferences, frustrations, suggestions, and opinions regarding Children with Special Health Care Needs (CSHCN) and navigating the healthcare system were shared and testimonials were transcribed.<br/>This study focused on the capstone conference. The study design was a strategic design workshop; results of the design analysis were analyzed qualitatively using descriptive content analysis. Themes described parent’s common experiences navigating the system, impacts resulting from such experiences, and desires for the care coordination system. Quotes were then grouped into major themes and subthemes for the capstone conference. After these themes were determined, the overarching goals of stakeholders could be assessed, and implementation projects could be described.

ContributorsBrennan, Bayley (Author) / Doebbeling, Bradley (Thesis director) / Lamb, Gerri (Committee member) / College of Health Solutions (Contributor, Contributor) / School of Life Sciences (Contributor) / Barrett, The Honors College (Contributor)
Created2021-05
Description
Obsessive Compulsive Disorder is a psychiatric disorder that affects 2-3% of children. OCD causes anxiety, fear, upsetting thoughts, and obsessions/compulsions. These symptoms can manifest in different ways and kids can become stuck in a stressful cycle of anxiety and the need to act on compulsions. Currently on the children's book

Obsessive Compulsive Disorder is a psychiatric disorder that affects 2-3% of children. OCD causes anxiety, fear, upsetting thoughts, and obsessions/compulsions. These symptoms can manifest in different ways and kids can become stuck in a stressful cycle of anxiety and the need to act on compulsions. Currently on the children's book market, OCD is an underrepresented topic. I chose to design a children's book that tackles the stigma of OCD in a form that is easy for children to understand.
ContributorsRaybon, Sophia (Author) / Ingram-Waters, Mary (Thesis director) / Davis, Jena (Committee member) / Barrett, The Honors College (Contributor) / School of Life Sciences (Contributor) / Sanford School of Social and Family Dynamics (Contributor)
Created2022-05
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Description

Obsessive Compulsive Disorder is a psychiatric disorder that affects 2-3% of children. OCD causes anxiety, fear, upsetting thoughts, and obsessions/compulsions. These symptoms can manifest in different ways and kids can become stuck in a stressful cycle of anxiety and the need to act on compulsions. Currently on the children's book

Obsessive Compulsive Disorder is a psychiatric disorder that affects 2-3% of children. OCD causes anxiety, fear, upsetting thoughts, and obsessions/compulsions. These symptoms can manifest in different ways and kids can become stuck in a stressful cycle of anxiety and the need to act on compulsions. Currently on the children's book market, OCD is an underrepresented topic. I chose to design a children's book that tackles the stigma of OCD in a form that is easy for children to understand.

ContributorsRaybon, Sophia (Author) / Ingram-Waters, Mary (Thesis director) / Davis, Jena (Committee member) / Barrett, The Honors College (Contributor) / School of Life Sciences (Contributor)
Created2022-05
165447-Thumbnail Image.png
Description

Obsessive Compulsive Disorder is a psychiatric disorder that affects 2-3% of children. OCD causes anxiety, fear, upsetting thoughts, and obsessions/compulsions. These symptoms can manifest in different ways and kids can become stuck in a stressful cycle of anxiety and the need to act on compulsions. Currently on the children's book

Obsessive Compulsive Disorder is a psychiatric disorder that affects 2-3% of children. OCD causes anxiety, fear, upsetting thoughts, and obsessions/compulsions. These symptoms can manifest in different ways and kids can become stuck in a stressful cycle of anxiety and the need to act on compulsions. Currently on the children's book market, OCD is an underrepresented topic. I chose to design a children's book that tackles the stigma of OCD in a form that is easy for children to understand.

ContributorsRaybon, Sophia (Author) / Ingram-Waters, Mary (Thesis director) / Davis, Jena (Committee member) / Barrett, The Honors College (Contributor) / School of Life Sciences (Contributor)
Created2022-05