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Family-Centered Perspectives to Improving Care Coordination for Children with Special Health Care Needs

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It is well known that the lack of care coordination in the healthcare system causes numerous problems including cost inefficiency and inconsistent care, specifically for complex pediatric and adult patients. Many pediatric patients have complex medical and social service needs which can be expensive for both the patient’s parents and…

It is well known that the lack of care coordination in the healthcare system causes numerous problems including cost inefficiency and inconsistent care, specifically for complex pediatric and adult patients. Many pediatric patients have complex medical and social service needs which can be expensive for both the patient’s parents and the general healthcare system. Therefore, it is difficult for the healthcare system to deliver the highest quality care possible, due to the number of appointments that have to be scheduled (with some being out of state), the large volume of physical health records, and overall lack of time parents have to coordinate this care while also caring for themselves and other family members. It is integral to find a more efficient way to coordinate care for these patients, in order to improve overall care, cost efficiency, and outcomes. <br/>A number of stakeholders in Arizona came together to work on this problem over several years. They were funded through a PCORI Eugene Washington Engagement grant to investigators at ASU. This project, Take Action for Arizona's Children through Care Coordination: A Bridge to Action was developed in order to further develop a research agenda and build the network (PCOR). Regional conferences were conducted in Flagstaff, Yuma, Phoenix, and Tucson, as well as a final capstone conference held in Phoenix. At these conferences, frustrations, suggestions, and opinions regarding Children with Special Health Care Needs (CSHCN) and navigating the healthcare system were shared and testimonials were transcribed.<br/>This study focused on the capstone conference. The study design was a strategic design workshop; results of the design analysis were analyzed qualitatively using descriptive content analysis. Themes described parent’s common experiences navigating the system, impacts resulting from such experiences, and desires for the care coordination system. Quotes were then grouped into major themes and subthemes for the capstone conference. After these themes were determined, the overarching goals of stakeholders could be assessed, and implementation projects could be described.
ContributorsBrennan, Bayley (Author) / Doebbeling, Bradley (Thesis director) / Lamb, Gerri (Committee member) / College of Health Solutions (Contributor, Contributor) / School of Life Sciences (Contributor) / Barrett, The Honors College (Contributor)
Created2021-05
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Venture Together: The Dire Need for Social Connection

Description
Since the onset of the COVID-19 pandemic, the world has been turned upside down. People everywhere are recommended to self-isolate and social distance to limit the spread of the deadly virus. Older adults specifically are being forced into isolation because they are at the highest risk for severe illness—illness that…

Since the onset of the COVID-19 pandemic, the world has been turned upside down. People everywhere are recommended to self-isolate and social distance to limit the spread of the deadly virus. Older adults specifically are being forced into isolation because they are at the highest risk for severe illness—illness that can result in hospitalization, intensive care, or even death. But this isolation is not new. Even before COVID-19, the older adult population has been suffering through a social isolation epidemic. And now, with social distancing measures in place, even more adults are being socially isolated to remain safe and healthy. But when individuals are isolated for long periods of time and no longer have an active social network to connect with, this social isolation can become harmful. Social isolation is known to increase the risk of cardiovascular disease, obesity, and stroke, and it is associated with anxiety, depression, and cognitive decline. Furthermore, the risk of premature death from any cause increases because of social isolation. With all these negative consequences, it is crucial that we confront the toll that COVID-19 countermeasures have taken on older adults and look for ways to prevent social isolation. Venture Together, a multi-user social media platform designed for older adults, attempts to do just this and more.
ContributorsHouchins, Michelle (Author) / Doebbeling, Bradley (Thesis director) / Mejía, Mauricio (Committee member) / Barrett, The Honors College (Contributor) / Computer Science and Engineering Program (Contributor) / School of International Letters and Cultures (Contributor)
Created2022-05