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Behavioral Health Provider Perspectives on Health Data Sharing

Description
Integrating behavioral and physical health is the key to value-based care. Little is known about data sharing preferences and consent practices for individuals with behavioral health conditions. This study focuses on identifying behavioral health provider perceptions about patient data sharing practices, preferences and perceived impact on care resulting from enhanced…

Integrating behavioral and physical health is the key to value-based care. Little is known about data sharing preferences and consent practices for individuals with behavioral health conditions. This study focuses on identifying behavioral health provider perceptions about patient data sharing practices, preferences and perceived impact on care resulting from enhanced patient control of record types during consent for data sharing.
ContributorsHiestand, Megan (Author) / Grando, Adela (Thesis director) / Murcko, Anita (Committee member) / Sharp, Richard (Committee member) / Biomedical Informatics Program (Contributor) / Barrett, The Honors College (Contributor)
Created2017-12
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Behavioral Health Providers’ Perspectives on Granular Information Sharing

Description
Granular information sharing allows patients to have more control over their medical records by giving them the choice of what information to share and with whom. Numerous studies have focused on patients’ perspectives, but this study focuses on the provider views of granular information sharing. Twenty-eight behavioral health providers (n=3…

Granular information sharing allows patients to have more control over their medical records by giving them the choice of what information to share and with whom. Numerous studies have focused on patients’ perspectives, but this study focuses on the provider views of granular information sharing. Twenty-eight behavioral health providers (n=3 prescribers, n=25 non-prescribers) from two different integrated healthcare facilities participated in a 2-hour focus group and took a survey at the beginning and at the end of the focus group. The survey responses were analyzed using descriptive analysis to understand how the providers' preferences changed from the pre-study to the post-study. Most providers changed their view about granular information sharing, as 30% of providers “were OK with patients having control over who sees what information in their electronic health record”, previously 83%. Overall, health care providers had concerns that granular information sharing because they feared that it would lead to increased costs, patient safety issues involving drug-drug interactions, and poor provider-patient relationships.
ContributorsIdouraine, Nassim Charif (Author) / Grando, Adela (Thesis director) / Murcko, Anita (Committee member) / College of Health Solutions (Contributor) / Barrett, The Honors College (Contributor)
Created2019-12
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Evaluating Patient Perceptions and Preferences on Granular Data Sharing in Behavioral Health Patients

Description
Individual control of sensitive health information is a matter of great concern to patients, practitioners, insurers and policymakers. Federal and state law generally supports consent approaches that allow patients to share all or none of their health data. However, research demonstrates that patients prefer more detailed control of their personal…

Individual control of sensitive health information is a matter of great concern to patients, practitioners, insurers and policymakers. Federal and state law generally supports consent approaches that allow patients to share all or none of their health data. However, research demonstrates that patients prefer more detailed control of their personal data sharing. In particular, little is known about data sharing preferences of patients with behavioral health conditions (BHCs). This study will explore the technical feasibility of supporting patient-driven, consent-based data access through a preliminary analysis of data collected from the My Data Choices e-consent tool. Through these findings, this research seeks to inform stakeholders about the clinical, ethical, policy, and regulatory implications of broader consent choices.
ContributorsKaing, Tina C. (Author) / Grando, Maria Adela (Thesis director) / Murcko, Anita (Committee member) / College of Health Solutions (Contributor, Contributor) / Barrett, The Honors College (Contributor)
Created2020-12