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- All Subjects: Biomedical Technology
- Creators: Ross, Heather
Description
Over the last half century, global healthcare practices have increasingly relied on technological interventions for the detection, prevention, and treatment of disability and disease. As these technologies become routinized and normalized into medicine, the social and political dimensions require substantial consideration. Such consideration is particularly critical in the context of ableism, in which bodily and cognitive differences such as disabilities are perceived as deviance and demand intervention. Further, neoliberalism, with its overwhelming tendency to privatize and individualize, creates conditions under which social systems abdicate responsibility for social issues such as ableism, shifting accountability onto individuals to prevent or mitigate difference through individualized means.
It is in this context that this dissertation, informed by critical disability studies and feminist science and technology studies, examines the understanding and enactment of disability and responsibility in relation to biomedical technologies. I draw from qualitative empirical data from three distinct case studies, each focused on a different biomedical technology: prenatal genetic screening and diagnosis, deep brain stimulation, and do-it-yourself artificial pancreas systems. Analyzing semi-structured interviews and primary documents through an inductive framework that takes up elements of Grounded Theory and hermeneutic phenomenology, this research demonstrates a series of tensions. As disability becomes increasingly associated with discrete biological characteristics and medical professionals claim a growing authority over disabled bodyminds, users of these technologies are caught in a double bind of personal responsibility and epistemic invalidation. Technologies, however, do not occupy either exclusively oppressive or liberatory roles. Rather, they are used with full acknowledgement of their role in perpetuating medical authority and neoliberal paradigms as well as their individual benefit. Experiential and embodied knowledge, particular when in tension with clinical knowledge, is invalidated as a transgression of expert authority. To reject these invalidations, communities cohering around subaltern knowledges emerge in resistance to the mismatched priorities and expectations of medical authority, creating space for alternative disabled imaginaries.
It is in this context that this dissertation, informed by critical disability studies and feminist science and technology studies, examines the understanding and enactment of disability and responsibility in relation to biomedical technologies. I draw from qualitative empirical data from three distinct case studies, each focused on a different biomedical technology: prenatal genetic screening and diagnosis, deep brain stimulation, and do-it-yourself artificial pancreas systems. Analyzing semi-structured interviews and primary documents through an inductive framework that takes up elements of Grounded Theory and hermeneutic phenomenology, this research demonstrates a series of tensions. As disability becomes increasingly associated with discrete biological characteristics and medical professionals claim a growing authority over disabled bodyminds, users of these technologies are caught in a double bind of personal responsibility and epistemic invalidation. Technologies, however, do not occupy either exclusively oppressive or liberatory roles. Rather, they are used with full acknowledgement of their role in perpetuating medical authority and neoliberal paradigms as well as their individual benefit. Experiential and embodied knowledge, particular when in tension with clinical knowledge, is invalidated as a transgression of expert authority. To reject these invalidations, communities cohering around subaltern knowledges emerge in resistance to the mismatched priorities and expectations of medical authority, creating space for alternative disabled imaginaries.
ContributorsMonteleone, Rebecca (Author) / Fonow, Mary Margaret (Thesis advisor) / Ross, Heather (Committee member) / Frow, Emma (Committee member) / Michael, Katina (Committee member) / Arizona State University (Publisher)
Created2020
Description
The goal of this project was to create a quasi experimental study using an education module that teaches evidence-based practice methods. The theoretical frameworks used to create the educational content were the self-efficacy theory and the Health Belief Model. The evaluation methods used are based on the Kirkpatrick four level model. An education module was created to be culturally and regionally relevant to South Sudan and Malawi. The education module was designed to be part of the SolarSPELL Health: Nursing and Midwifery Library. This was done by performing a literature review, curating resources, creating the educational materials, creating learning scenarios, curating relevant belief scales, and integrating the content into the SolarSPELL Health: Nursing and Midwifery Library. The on ground implementation of the materials was not a part of this project, but instead is planned for future research. This project creates a foundation from which SolarSPELL Health can implement the resources at a future date. In the long term, the goal of implementing the experiment is to improve maternal mental and physical health outcomes in South Sudan and Malawi, both of which have extremely high rates of maternal mortality and morbidity.
ContributorsRaymond, Courtney (Author) / Ross, Heather (Thesis advisor) / Hosman, Laura (Committee member) / Pepin, Susan (Committee member) / Arizona State University (Publisher)
Created2021